The Pediatric and Primary Lymphedema Working Group (PPL-WG) is one of the six Rare Disease Working Groups (RDWGs) of VASCERN that specialize in a particular type/group of rare vascular disease(s).
The PPL-WG is chaired by Dr. Robert DAMSTRA, Dermatologist at the Expert center for lympho-vascular medicine, Nij Smellinghe hospital in Drachten, the Netherlands and is Co-Chaired by Dr. Sarah THOMIS, from the Lymphovenous Center at University Hospitals Leuven in Leuven, Belgium. These chairs, and all members of the Working Group, have a long-standing expertise in the diagnosis and management of adults and children with lymphatic problems.
The PPL-WG cooperates with the European Patient Advocacy Group (ePAG), whose representatives in the PPL-WG is ePAG Co-Chair Manuela Lourenço Marques (ANDLymph/National Association of Sufferers of Lymphatic Disorders).
The PPL-WG interacts with all the other WGs within this ERN, especially the Vascular Anomalies WG (VASCA-WG), particularly with regard to some lymphovascular disorders, which may present with lymphedema of the extremities.