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VASCERN Experts
Cardiac Surgeon
VASCERN HTAD Affiliated Partner Centre
Medical University Innsbruck, Innsbruck, Austria
Molecular Biologist
VASCERN HTAD Affiliated Partner Centre
The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus
Molecular Biologist
VASCERN HTAD and MSA Affiliated Partner Centre
The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus
Cardiac Surgeon
VASCERN HTAD Affiliated Partner Centre
National Institute of Cardiac Surgery and Interventional Cardiology, Centre Hospitalier de Luxembourg, Luxembourg
Vascular Surgeon
VASCERN HTAD and MSA Affiliated Partner Centre
Department of Sugery, Mater Dei Hospital, Malta
Cardiologist
VASCERN HTAD Affiliated Partner Centre
Department of Cardiology, Mater Dei Hospital, Malta
Dermatologist
VASCERN PPL Affiliated Partner Centre
Dermatovenereological Clinic, University Medical Center Ljubljana
Pediatric surgeon
VASCERN VASCA Affiliated Partner Centre
Department of Paediatric and Adolescent Surgery, University Hospital Graz
Pediatric surgeon
VASCERN VASCA Affiliated Partner Centre
Department of Paediatric and Adolescent Surgery, University Hospital Graz
Cardiologist
VASCERN HTAD Affiliated Partner Centre
Marfan Syndrome Unit, Hospital Universitari Vall d’Hebron
Cardiologist
VASCERN HTAD Affiliated Partner Centre
Marfan Syndrome Unit, Hospital Universitari Vall d’Hebron
Cardiologist
VASCERN HTAD European Reference Centre
Clinical Genetics, Radboud University Medical Center
Consultant Physician
VASCERN PPL European Reference Centre
Paediatric and Primary Lymphedema Department
Derby Teaching Hospitals NHSF Trust
Molecular Biologist, Associate Professor of Clinical Pathology
VASCERN HTAD European Reference Centre
Regional Tuscany Reference Center for Marfan Syndrome and related disorders
Careggi Hospital, University of Florence
Genetic counselor
VASCERN HTAD European Reference Centre
Department of Cardiology and Center for Medical Genetics Ghent, Ghent University Hospital
Clinical geneticist
VASCERN HTAD and MSA European Reference Centre
Center of Medical Genetics, University Hospital of Antwerp University of Antwerp
Pediatrician
VASCERN HHT European Reference Centre
Hammersmith Hospital, Imperial College Healthcare NHS Trust, London
ENT-Physician
VASCERN HHT European Reference Centre
Essen Center for Rare Diseases, Essen University Hospital
Clinical Geneticist
VASCERN HHT European Reference Centre
Odense University Hospital
Cardiologist
VASCERN HTAD European Reference Centre
Department of Vascular Medicine, Department of General and Interventional Cardiology
University Heart Center Hamburg, University Medical Center Hamburg-Eppendorf
Cardiac surgeon
VASCERN HTAD European Reference Centre
Heart and Vascular Center, Semmelweis University
Cardiologist
VASCERN HTAD European Reference Centre
CRMR Marfan Syndrome and related disorders
Service de cardiologie, AP-HP, Hôpital Bichat-Claude Bernard
Physician Researcher
VASCERN HTAD European Reference Centre
Center for Inherited Cardiovascular Diseases
Fondazione IRCCS Policlinico San Matteo
Clinical Genetist
VASCERN HHT European Reference Centre
Azienda Ospedaliero-Universitaria
Consorziale di Bari Policlinico-Giovanni XXIII
Clinical Geneticist
VASCERN HTAD European Reference Centre
Department of Cardiology, Academic Medical Center Amsterdam
Cardiologist
VASCERN HTAD and MSA European Reference Centre
Clinical Genetics and Cardiology, Erasmus Medical Center Rotterdam
Clinical Genetist
VASCERN HTAD European Reference Centre
Clinical Genetics, Karolinska University Hospital
Consultant cardiologist
VASCERN HTAD and MSA European Reference Centre
South East Thames Regional Genetics Service, Guy’s Hospital, London
Dermatologist
VASCERN PPL European Reference Centre
Expert Center for Lympho-vascular Medicine, Nij Smellinghe hospital
Consultant in Dermatology and Lymphovascular Medecine
VASCERN PPL European Reference Centre
Primary and Paediatric lymphedema clinic
Dermatology and Clinical Genetics, St George’s University Hospitals
Vascular surgeon
VASCERN PPL European Reference Centre
Lymphedema Centre, AZ Sint-Maarten, Mechelen, Belgium
Physiotherapist
VASCERN PPL European Reference Centre
Lymphovenous Center, University Hospitals Leuven
Cardiologist
VASCERN MSA European Reference Centre
Rare Vascular Diseases Reference Centre
AP-HP, HEGP Hôpital Européen Georges Pompidou
Specialist in internal medicine, Wound Management Lymphology
VASCERN PPL European Reference Centre
Consortium: University Medical Center, Freiburg, Freiburg, Germany and Földi Clinic
European Centre for Lymphology, Merzhausen, Germany
Pediatrician
VASCERN VASCA European Reference Centre
Center of Pediatrics and Adolescent Medicine, University Medical Center Freiburg
Plastic and microsurgery Surgeon
Coordinator of the Center for Vascular Anomalies
VASCERN VASCA European Reference Centre
Cliniques Universitaires Saint-Luc
Dermatologist
VASCERN VASCA European Reference Centre
Radboudumc Expert center for Hemangioma and Vascular Anomalies (Hecovan)
Plastic Surgeon
VASCERN PPL European Reference Centre
Department of Plastic Surgery, Helsinki University Hospital
Plastic Surgeon
VASCERN PPL European Reference Centre
Department of Plastic Surgery, Helsinki University Hospital
Pediatric Surgeon
VASCERN VASCA European Reference Centre
Department of Pediatric Surgery, Helsinki University Hospital
Consultant Dermatologist
VASCERN VASCA European Reference Centre
Dermatology Department, Our Lady’s Children’s Hospital Crumlin
Dermatologist
VASCERN VASCA European Reference Centre
UOC di Dermatologia Bambino Gesù Children’s Hospital
Pediatric surgeon
VASCERN VASCA European Reference Centre
Department of Pediatric Surgery
Karolinska University Hospital Eugeniavägen 3
Interventional dermatologist
VASCERN VASCA European Reference Centre
UOC di Dermatologia Bambino Gesù Children’s Hospital
Professor in Dermatology
VASCERN VASCA European Reference Centre
Dermatology Department, Our Lady’s Children’s Hospital Crumlin James’s Street
Professor of Interventional Radiology
VASCERN VASCA European Reference Centre
Radboudumc Expert center for Hemangioma and Vascular Anomalies (Hecovan), Nijmegen
Molecular Genetics
VASCERN VASCA European Reference Centre
Vascular Anomalies Center, Cliniques Universitaires Saint-Luc, Bruxelles
Pediatric Hematologist/Oncologist
VASCERN VASCA and PPL European Reference Centre
Center of Pediatrics and Adolescent Medicine, University Medical Center Freiburg
Internist expert in Lymphology
VASCERN PPL European Reference Centre
Consortium: AP-HP, HEGP Hôpital européen Georges Pompidou
French Reference Center rare vascular diseases, Primary Lymphedema Unit
Hôpital Cognacq-Jay, Paris
Vascular surgeon
VASCERN PPL European Reference Centre
Lymphovenous Center, University Hospitals Leuven
Vascular surgeon
VASCERN PPL European Reference Centre
Lymphedema Centre, AZ Sint-Maarten, Mechelen
Consultant and Honorary Professor in Clinical Genetics
VASCERN PPL European Reference Centre
Primary and Paediatric lymphedema clinic, Dermatology and Clinical Genetics, St George’s University Hospitals, London
Dermatologist
VASCERN PPL European Reference Centre
Expert Center for Lympho-vascular Medicine
Nij Smellinghe hospital
Geneticist
VASCERN MSA European Reference Centre
Rare Vascular Diseases Reference Centre, AP-HP
HEGP Hôpital Européen Georges Pompidou
Clinical Genetist
VASCERN MSA and HTAD European Reference Centre
South East Thames Regional Genetics Service, Guy’s Hospital, London
Clinical geneticist
VASCERN HTAD and MSA European Reference Centre
Clinical Genetics and Cardiology, Erasmus Medical Center Rotterdam
Clinical Geneticist
VASCERN HTAD European Reference Centre
Clinical Genetics, Radboud University Medical Center, Nijmegen
Cardiologist
VASCERN HTAD European Reference Centre
Department of Cardiology, Academic Medical Center, Amsterdam
Clinical Pathologist
VASCERN HTAD European Reference Centre
Regional Tuscany Reference Center for Marfan Syndrome and related disorders
Careggi Hospital, University of Florence
Geneticist
VASCERN HTAD European Reference Centre
Center for Inherited Cardiovascular Diseases, IRCCS Foundation Policlinico San Matteo
Fondazione IRCCS Policlinico San Matteo
Cardiac surgeon
VASCERN HTAD European Reference Centre
Heart and Vascular Center, Semmelweis University
Clinical cardiogenetics
VASCERN HTAD and MSA European Reference Centre
Center of Medical Genetics, University Hospital of Antwerp University of Antwerp
Cardiologist
VASCERN HTAD European Reference Centre
CRMR Marfan Syndrome and related disorders, Service de cardiologie
AP-HP, Hôpital Bichat-Claude Bernard, Paris
Cardiologist and clinical geneticist
VASCERN HTAD and MSA European Reference Centre
Department of Cardiology and Center for Medical Genetics Ghent, Ghent University Hospital
Internal medecine
VASCERN HHT European Reference Centre
Azienda Ospedaliero-Universitaria
Consorziale di Bari Policlinico
Pulmunologist
VASCERN HHT European Reference Centre
St. Antonius Hospital, Nieuwegein
Neurosurgeon
VASCERN HHT European Reference Centre
Essen Center for Rare Diseases, Essen University Hospital
General clinician
VASCERN HHT European Reference Centre
Odense University Hospital
General clinician
VASCERN HHT European Reference Centre
Maggiore Hospital, ASST Crema
Paediatrician and geneticist
VASCERN HHT European Reference Centre
CHU de Lyon HCL
Medical specialist and pulmonologist
VASCERN HHT European Reference Centre
Hammersmith Hospital, Imperial College Healthcare NHS Trust, London
Molecular Biologist
VASCERN HTAD and MSA Affiliated Partner Centre
The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus
Cardiac Surgeon
VASCERN HTAD Affiliated Partner Centre
National Institute of Cardiac Surgery and Interventional Cardiology, Centre Hospitalier de Luxembourg, Luxembourg
Vascular Surgeon
VASCERN HTAD and MSA Affiliated Partner Centre
Department of Sugery, Mater Dei Hospital, Malta
Dermatologist
VASCERN PPL Affiliated Partner Centre
Dermatovenereological Clinic, University Medical Center Ljubljana
Pediatric surgeon
VASCERN VASCA Affiliated Partner Centre
Department of Paediatric and Adolescent Surgery, University Hospital Graz
Plastic surgeon
VASCERN VASCA European Reference Centre
Karolinska University Hospital
Cardiologist
VASCERN HTAD European Reference Centre
Clinical Genetics, Radboud University Medical Center
Pediatrician
VASCERN HHT European Reference Centre
Hammersmith Hospital, Imperial College Healthcare NHS Trust, London
ENT-Physician
VASCERN HHT European Reference Centre
Essen Center for Rare Diseases, Essen University Hospital
Cardiologist
VASCERN HTAD European Reference Centre
Department of Vascular Medicine, Department of General and Interventional Cardiology
University Heart Center Hamburg, University Medical Center Hamburg-Eppendorf
Cardiologist
VASCERN HTAD European Reference Centre
Department of Vascular Medicine, Department of General and Interventional Cardiology
University Heart Center Hamburg, University Medical Center Hamburg-Eppendorf
Cardiac surgeon
VASCERN HTAD European Reference Centre
Heart and Vascular Center, Semmelweis University
Cardiologist
VASCERN HTAD European Reference Centre
CRMR Marfan Syndrome and related disorders
Service de cardiologie, AP-HP, Hôpital Bichat-Claude Bernard
Cardiologist
VASCERN HTAD and MSA European Reference Centre
Clinical Genetics and Cardiology, Erasmus Medical Center Rotterdam
Vascular surgeon
VASCERN PPL European Reference Centre
Lymphedema Centre, AZ Sint-Maarten, Mechelen, Belgium
Cardiologist
VASCERN MSA European Reference Centre
Rare Vascular Diseases Reference Centre
AP-HP, HEGP Hôpital Européen Georges Pompidou
Pediatrician
VASCERN VASCA European Reference Centre
Center of Pediatrics and Adolescent Medicine, University Medical Center Freiburg
Pediatric Surgeon
VASCERN VASCA European Reference Centre
Department of Pediatric Surgery, Helsinki University Hospital
Dermatologist
VASCERN VASCA European Reference Centre
UOC di Dermatologia Bambino Gesù Children’s Hospital
Consultant Pediatric Surgeon
VASCERN VASCA European Reference Centre
Department of Pediatric Surgery
Helsinki University Hospital Topeliuksenkatu 5
Senior Research Nurse
Lymphoedema and Palliative Medicine
VASCERN PPL European Reference Centre
Paediatric and Primary Lymphedema Department
Derby Teaching Hospitals NHSF Trust
Internist expert in Lymphology
VASCERN PPL European Reference Centre
Consortium: AP-HP, HEGP Hôpital européen Georges Pompidou
French Reference Center rare vascular diseases, Primary Lymphedema Unit
Hôpital Cognacq-Jay, Paris
Vascular surgeon
VASCERN PPL European Reference Centre
Lymphovenous Center, University Hospitals Leuven
Cardiac surgeon
VASCERN HTAD European Reference Centre
Heart and Vascular Center, Semmelweis University
Neurosurgeon
VASCERN HHT European Reference Centre
Essen Center for Rare Diseases, Essen University Hospital
Medical specialist and pulmonologist
VASCERN HHT European Reference Centre
Hammersmith Hospital, Imperial College Healthcare NHS Trust, London
VASCERN is one of the 24 European Reference Networks (ERNs) on rare diseases that were approved in December 2016, following the first ERN Call for proposals (European Commission, DG Health, March 2016) and that were officially launched in March 2017. Our ERN on Rare Multisystemic Vascular Diseases gathers 35 expert teams from 30 highly specialized multidisciplinary Healthcare providers (HCPs) plus 7 affiliated partner centers, coming from 17 EU Member States, in this area of expertise. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Center of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.
Take a look at our flyer here:
For the web version of the flyer, click here
For the print version of the flyer, click here
VASCERN includes five Rare Diseases Working Groups: Hereditary Haemorrhagic Telangiectasia (HHT-WG), Heritable Thoracic Aortic Diseases (HTAD-WG), Medium Sized Arteries (vascular Ehlers Danlos Syndrome) (MSA-WG), Pediatric and Primary Lymphedema (PPL-WG), Vascular Anomalies (VASCA-WG). This scope will enlarge to include all Rare Multisystemic Vascular Diseases. The specific Patient-WG enables Patient representatives to work on common issues and to be involved in all activities. In addition, several Thematic Working Groups are established to better tackle transversal work packages on: communication, eHealth, ethics, patient registry, and training & education.
All our HCP Members are Centers of Reference/Excellence recognized in their countries. These HCP have developed extensive European collaborations through their specific Rare Diseases’ networks. They joined this ERN to foster and reinforce European cooperation in Rare Multisystemic Vascular Diseases, following a common and multidisciplinary approach to patient care, in order to overcome the challenges of rarity.
They are committed to improve diagnosis, treatment, and care for and with patients by using all opportunities and activities, which can be offered by VASCERN.
Find out all information about our Network
All you need to know about ERNs
