Latest News

  • Download the new version 2 of VASCERN App now!

    Download the new version 2 of VASCERN App now!

    Sep 18, 2020

  • Two external guest patient cases from Serbia and Portugal discussed using the CPMS

    Two external guest patient cases from Serbia and Portugal discussed using the CPMS

    Sep 14, 2020

  • VASCERN Spotlights: Andrea Diociaiuti

    VASCERN Spotlights: Andrea Diociaiuti

    Sep 9, 2020

  • Six new language subtitles added to the Pills of Knowledge video on Klippel-Trenaunay syndrome!

    Six new language subtitles added to the Pills of Knowledge video on Klippel-Trenaunay syndrome!

    Sep 7, 2020

  • VASCERN App Version 2 now available for download!

    VASCERN App Version 2 now available for download!

    Aug 6, 2020

  • New Position Paper from the Hereditary Haemorrhagic Telangiectasia Working Group on Cerebral Screening in Adults and Children with HHT

    New Position Paper from the Hereditary Haemorrhagic Telangiectasia Working Group on Cerebral Screening in Adults and Children with HHT

    Jul 28, 2020

  • Capillary, Venous and Lymphatic Malformation Patient Pathways now available!

    Capillary, Venous and Lymphatic Malformation Patient Pathways now available!

    Jul 17, 2020

  • Research News: Review Article of Targeted Therapies for Vascular Malformations

    Research News: Review Article of Targeted Therapies for Vascular Malformations

    Jun 29, 2020

  • Recap of the Medium-Sized Arteries Working Group online meeting!

    Recap of the Medium-Sized Arteries Working Group online meeting!

    Jun 26, 2020

  • EJP RD tool for FAIRification of patient registries, made for the VASCA Registry, now available!

    EJP RD tool for FAIRification of patient registries, made for the VASCA Registry, now available!

    Jun 25, 2020

  • VASCERN Partners with The Marfan Foundation for the First-Ever E3 International Summit!

    VASCERN Partners with The Marfan Foundation for the First-Ever E3 International Summit!

    Jun 24, 2020

  • VASCERN Spotlights: Charissa Frank

    VASCERN Spotlights: Charissa Frank

    Jun 23, 2020

VASCERN Experts

Dr. Julia DUMFARTH

Cardiac Surgeon

VASCERN HTAD Affiliated Partner Centre

  Medical University Innsbruck, Innsbruck, Austria

Dr. Anna KERAVNOU

Molecular Biologist

VASCERN HTAD Affiliated Partner Centre

  The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus

Dr. Evy BASHIARDES

Molecular Biologist

VASCERN HTAD and MSA Affiliated Partner Centre

  The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus

Pr. Klaus KALLENBACH

Cardiac Surgeon

VASCERN HTAD Affiliated Partner Centre

National Institute of Cardiac Surgery and Interventional Cardiology, Centre Hospitalier de Luxembourg, Luxembourg

Pr. Kevin CASSAR

Vascular Surgeon

VASCERN HTAD and MSA Affiliated Partner Centre

Department of Sugery, Mater Dei Hospital, Malta

Dr. Maryanne CARUANA

Cardiologist

VASCERN HTAD Affiliated Partner Centre

Department of Cardiology, Mater Dei Hospital, Malta

Dr. Tanja Planinšek Ručigaj

Dermatologist

VASCERN PPL Affiliated Partner Centre

Dermatovenereological Clinic, University Medical Center Ljubljana

Dr. Emir HAXHIJA

Pediatric surgeon

VASCERN VASCA Affiliated Partner Centre

Department of Paediatric and Adolescent Surgery, University Hospital Graz

Dr. Paolo GASPARELLA

Pediatric surgeon

VASCERN VASCA Affiliated Partner Centre

Department of Paediatric and Adolescent Surgery, University Hospital Graz

Dr. Gisela TEIXIDO

Cardiologist

VASCERN HTAD Affiliated Partner Centre

Marfan Syndrome Unit, Hospital Universitari Vall d’Hebron

Dr. Arturo EVANGELISTA

Cardiologist

VASCERN HTAD Affiliated Partner Centre

Marfan Syndrome Unit, Hospital Universitari Vall d’Hebron

Pr. Filip FARNEBO

Plastic surgeon

VASCERN VASCA European Reference Centre

Karolinska University Hospital

Dr. Janneke TIMMERMANS

Cardiologist

VASCERN HTAD European Reference Centre

Clinical Genetics, Radboud University Medical Center

Dr. Vaughan KEELEY

Consultant Physician

VASCERN PPL European Reference Centre

Paediatric and Primary Lymphedema Department

Derby Teaching Hospitals NHSF Trust

Dr. Betti GIUSTI

Molecular Biologist, Associate Professor of Clinical Pathology

VASCERN HTAD European Reference Centre

Regional Tuscany Reference Center for Marfan Syndrome and related disorders

Careggi Hospital, University of Florence

Dr. Saverio ALICANTE

Gastroenterologist

VASCERN HHT European Reference Centre

Maggiore Hospital, ASST Crema

Dr. Fransiska MALFAIT

Clinical Geneticist

VASCERN MSA European Reference Centre

Department of Cardiology and Center for Medical Genetics Ghent, Ghent University Hospital

 

Liesbeth WILDERO VAN WOUWE

Genetic counselor

VASCERN HTAD European Reference Centre

Department of Cardiology and Center for Medical Genetics Ghent, Ghent University Hospital

Dr. Aline VERSTRAETEN

Clinical geneticist

VASCERN HTAD and MSA European Reference Centre

Center of Medical Genetics, University Hospital of Antwerp University of Antwerp

Dr. Nicky COOTE

Pediatrician

VASCERN HHT European Reference Centre

Hammersmith Hospital, Imperial College Healthcare NHS Trust, London

 

Dr. Freya DROEGE

ENT-Physician

VASCERN HHT European Reference Centre

Essen Center for Rare Diseases, Essen University Hospital

Dr. Pernille TORRING

Clinical Geneticist

VASCERN HHT European Reference Centre

Odense University Hospital

Pr. Yskert VON KODOLITSCH

Cardiologist

VASCERN HTAD European Reference Centre

Department of Vascular Medicine, Department of General and Interventional Cardiology

University Heart Center Hamburg, University Medical Center Hamburg-Eppendorf

 

Dr. Katalin SZOCS

Cardiologist

VASCERN HTAD European Reference Centre

Department of Vascular Medicine, Department of General and Interventional Cardiology

University Heart Center Hamburg, University Medical Center Hamburg-Eppendorf

Dr. Kalman BENKE

Cardiac surgeon

VASCERN HTAD European Reference Centre

Heart and Vascular Center, Semmelweis University

Dr. Olivier MILLERON

Cardiologist

VASCERN HTAD European Reference Centre

CRMR Marfan Syndrome and related disorders

Service de cardiologie, AP-HP, Hôpital Bichat-Claude Bernard

Dr. Alessandro DI TORO

Physician Researcher

VASCERN HTAD European Reference Centre

Center for Inherited Cardiovascular Diseases

Fondazione IRCCS Policlinico San Matteo

Pr. Olivier DUPUIS

Gynecologist obstetrics

VASCERN HHT European Reference Centre

CHU de Lyon HCL

Dr. Gennaro MARIANO LENATO

Clinical Genetist

VASCERN HHT European Reference Centre

Azienda Ospedaliero-Universitaria
Consorziale di Bari Policlinico-Giovanni XXIII

Dr. Marco POST

Cardiologist

VASCERN HHT European Reference Centre

St. Antonius Hospital

 

Dr. Marieke BAARS

Clinical Geneticist

VASCERN HTAD European Reference Centre

Department of Cardiology, Academic Medical Center Amsterdam

 

Pr. Jolien ROOS-HESSELINK

Cardiologist

VASCERN HTAD and MSA European Reference Centre

Clinical Genetics and Cardiology, Erasmus Medical Center Rotterdam

 

Dr. Erik BJORCK

Clinical Genetist

VASCERN HTAD European Reference Centre

Clinical Genetics, Karolinska University Hospital

 

Dr. Yaso EMMANUEL

Consultant cardiologist

VASCERN HTAD and MSA European Reference Centre

South East Thames Regional Genetics Service, Guy’s Hospital, London

Dr. Kirsten VAN DUINEN

Dermatologist

VASCERN PPL European Reference Centre

Expert Center for Lympho-vascular Medicine, Nij Smellinghe hospital

 

Dr. Kristiana GORDON

Consultant in Dermatology and Lymphovascular Medecine

VASCERN PPL European Reference Centre

Primary and Paediatric lymphedema clinic

Dermatology and Clinical Genetics, St George’s University Hospitals

Dr. Florence BELVA

Vascular surgeon

VASCERN PPL European Reference Centre

Lymphedema Centre, AZ Sint-Maarten, Mechelen, Belgium

Dr. Nele DEVOOGDT

Physiotherapist

VASCERN PPL European Reference Centre

Lymphovenous Center, University Hospitals Leuven

Dr. Michael FRANK

Cardiologist

VASCERN MSA European Reference Centre

Rare Vascular Diseases Reference Centre

AP-HP, HEGP Hôpital Européen Georges Pompidou

Dr. Michael OBERLIN

Specialist in internal medicine, Wound Management Lymphology

VASCERN PPL European Reference Centre

Consortium: University Medical Center, Freiburg, Freiburg, Germany and Földi Clinic

European Centre for Lymphology, Merzhausen, Germany

Dr. Friedrich KAPP

Pediatrician

VASCERN VASCA European Reference Centre

Center of Pediatrics and Adolescent Medicine, University Medical Center Freiburg

Pr. Laurence M. BOON

Plastic and microsurgery Surgeon

Coordinator of the Center for Vascular Anomalies

VASCERN VASCA European Reference Centre

Cliniques Universitaires Saint-Luc

Dr. Carine VAN DER VLEUTEN

Dermatologist

VASCERN VASCA European Reference Centre

Radboudumc Expert center for Hemangioma and Vascular Anomalies (Hecovan)

Dr. Heli KAVOLA

Plastic Surgeon

VASCERN PPL European Reference Centre

Department of Plastic Surgery, Helsinki University Hospital

 

Pr. Sinikka SUOMINEN

Plastic Surgeon

VASCERN PPL European Reference Centre

Department of Plastic Surgery, Helsinki University Hospital

Dr. Kristiina KYRKLUND

Pediatric Surgeon

VASCERN VASCA European Reference Centre

Department of Pediatric Surgery, Helsinki University Hospital

 

 

Dr. Veronika DVORAKOVA

Consultant Dermatologist

VASCERN VASCA European Reference Centre

Dermatology Department, Our Lady’s Children’s Hospital Crumlin

 

 

Dr. May EL HACHEM

Dermatologist

VASCERN VASCA European Reference Centre

UOC di Dermatologia Bambino Gesù Children’s Hospital

Dr. Nader GHAFFARPOUR

Pediatric surgeon

VASCERN VASCA European Reference Centre

Department of Pediatric Surgery

Karolinska University Hospital Eugeniavägen 3

 

Dr. Andrea DIOCIAIUTI

Interventional dermatologist

VASCERN VASCA European Reference Centre

UOC di Dermatologia Bambino Gesù Children’s Hospital

Pr. Alan IRVINE

Professor in Dermatology

VASCERN VASCA European Reference Centre

Dermatology Department, Our Lady’s Children’s Hospital Crumlin James’s Street

Pr. Päivi SALMINEN

Consultant Pediatric Surgeon

VASCERN VASCA European Reference Centre

Department of Pediatric Surgery

Helsinki University Hospital Topeliuksenkatu 5

 

 

Pr. Leo SCHULTZE KOOL

Professor of Interventional Radiology

VASCERN VASCA European Reference Centre

Radboudumc Expert center for Hemangioma and Vascular Anomalies (Hecovan), Nijmegen

Pr. Miikka VIKKULA

Molecular Genetics

VASCERN VASCA European Reference Centre

Vascular Anomalies Center, Cliniques Universitaires Saint-Luc, Bruxelles

Katie RICHES

Senior Research Nurse

Lymphoedema and Palliative Medicine

VASCERN PPL European Reference Centre

Paediatric and Primary Lymphedema Department

Derby Teaching Hospitals NHSF Trust

 

Pr. Jochen RÖSSLER

Pediatric Hematologist/Oncologist

VASCERN VASCA and PPL European Reference Centre

Center of Pediatrics and Adolescent Medicine, University Medical Center Freiburg

Dr. Stéphane VIGNES

Internist expert in Lymphology

VASCERN PPL European Reference Centre

Consortium: AP-HP, HEGP Hôpital européen Georges Pompidou

French Reference Center rare vascular diseases, Primary Lymphedema Unit

Hôpital Cognacq-Jay, Paris

Dr. Sarah THOMIS

Vascular surgeon

VASCERN PPL European Reference Centre

Lymphovenous Center, University Hospitals Leuven

Dr. Guido GIACALONE

Vascular surgeon

VASCERN PPL European Reference Centre

Lymphedema Centre, AZ Sint-Maarten, Mechelen

Pr. Sahar MANSOUR

Consultant and Honorary Professor in Clinical Genetics

VASCERN PPL European Reference Centre

Primary and Paediatric lymphedema clinic, Dermatology and Clinical Genetics, St George’s University Hospitals, London

 

Dr. Robert J. DAMSTRA

Dermatologist

VASCERN PPL European Reference Centre

Expert Center for Lympho-vascular Medicine

Nij Smellinghe hospital

Pr. Xavier JEUNEMAITRE

Geneticist

VASCERN MSA European Reference Centre

Rare Vascular Diseases Reference Centre, AP-HP

HEGP Hôpital Européen Georges Pompidou

Dr. Leema ROBERT

Clinical Genetist

VASCERN MSA and HTAD European Reference Centre

South East Thames Regional Genetics Service, Guy’s Hospital, London

Dr. Ingrid VAN DE LAAR

Clinical geneticist

VASCERN HTAD and MSA European Reference Centre

Clinical Genetics and Cardiology, Erasmus Medical Center Rotterdam

Dr. Marlies KEMPERS

Clinical Geneticist

VASCERN HTAD European Reference Centre

Clinical Genetics, Radboud University Medical Center, Nijmegen

Pr. Maarten GROENINK

Cardiologist

VASCERN HTAD European Reference Centre

Department of Cardiology, Academic Medical Center, Amsterdam

Pr. Guglielmina PEPE

Clinical Pathologist

VASCERN HTAD European Reference Centre

Regional Tuscany Reference Center for Marfan Syndrome and related disorders

Careggi Hospital, University of Florence

Pr. Eloisa ARBUSTINI

Geneticist

VASCERN HTAD European Reference Centre

Center for Inherited Cardiovascular Diseases, IRCCS Foundation Policlinico San Matteo

Fondazione IRCCS Policlinico San Matteo

Pr. Zoltan SZABOLCS

Cardiac surgeon

VASCERN HTAD European Reference Centre

Heart and Vascular Center, Semmelweis University

Pr. Bart LOEYS

Clinical cardiogenetics

VASCERN HTAD and MSA European Reference Centre

Center of Medical Genetics, University Hospital of Antwerp University of Antwerp

Pr. Guillaume JONDEAU

Cardiologist

VASCERN HTAD European Reference Centre

CRMR Marfan Syndrome and related disorders, Service de cardiologie

AP-HP, Hôpital Bichat-Claude Bernard, Paris

Pr. Julie De BACKER

Cardiologist and clinical geneticist

VASCERN HTAD and MSA European Reference Centre

Department of Cardiology and Center for Medical Genetics Ghent, Ghent University Hospital

Pr. Carlo SABBÀ

Internal medecine

VASCERN HHT European Reference Centre

Azienda Ospedaliero-Universitaria
Consorziale di Bari Policlinico

Dr. Hans-Jurgen MAGER

Pulmunologist

VASCERN HHT European Reference Centre

St. Antonius Hospital, Nieuwegein

Pr. Ulrich SURE

Neurosurgeon

VASCERN HHT European Reference Centre

Essen Center for Rare Diseases, Essen University Hospital

Pr. Anette KJELDSEN

General clinician

VASCERN HHT European Reference Centre

Odense University Hospital

Pr. Elisabetta BUSCARINI

General clinician

VASCERN HHT European Reference Centre

Maggiore Hospital, ASST Crema

Dr. Sophie DUPUIS-GIROD

Paediatrician and  geneticist

VASCERN HHT European Reference Centre

CHU de Lyon HCL

 

Pr. Claire SHOVLIN

Medical specialist and pulmonologist

VASCERN HHT European Reference Centre

Hammersmith Hospital, Imperial College Healthcare NHS Trust, London

 

LogoOnly

VASCERN is one of the 24 European Reference Networks (ERNs) on rare diseases that were approved in December 2016, following the first ERN Call for proposals (European Commission, DG Health, March 2016) and that were officially launched in March 2017. Our ERN on Rare Multisystemic Vascular Diseases gathers 35 expert teams from 30 highly specialized multidisciplinary Healthcare providers (HCPs) plus 7 affiliated partner centers, coming from 17 EU Member States, in this area of expertise. VASCERN is coordinated by Prof. Guillaume Jondeau, Cardiologist and Coordinator of the Center of Reference for Marfan Syndrome and related disorders, AP-HP Hôpital Bichat, Paris, France.

Take a look at our flyer here:

For the web version of the flyer, click here

For the print version of the flyer, click here

VASCERN includes five Rare Diseases Working Groups: Hereditary Haemorrhagic Telangiectasia (HHT-WG), Heritable Thoracic Aortic Diseases (HTAD-WG), Medium Sized Arteries (vascular Ehlers Danlos Syndrome) (MSA-WG), Pediatric and Primary Lymphedema (PPL-WG), Vascular Anomalies (VASCA-WG). This scope will enlarge to include all Rare Multisystemic Vascular Diseases. The specific Patient-WG enables Patient representatives to work on common issues and to be involved in all activities. In addition, several Thematic Working Groups are established to better tackle transversal work packages on: communication, eHealth, ethics, patient registry, and training & education.

All our HCP Members are Centers of Reference/Excellence recognized in their countries. These HCP have developed extensive European collaborations through their specific Rare Diseases’ networks. They joined this ERN to foster and reinforce European cooperation in Rare Multisystemic Vascular Diseases, following a common and multidisciplinary approach to patient care, in order to overcome the challenges of rarity.

They are committed to improve diagnosis, treatment, and care for and with patients by using all opportunities and activities, which can be offered by VASCERN.

Find out all information about our Network

All you need to know about ERNs

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VASCERN is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern.

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