Patient Pathways
Our patient pathways aim to improve the care and management of patients with rare vascular diseases. They include “red flags” that may indicate the presence of the disease, how to reach a definitive diagnosis, and management and follow-up recommendations. They are critical tools for defining the best patient care and will be validated and updated as needed.
These are the deliverables for our Work Package on “Patient Pathways.” VASCERN’s Rare Disease Working Groups are developing disease (or group of disease) specific Patient Pathways.
The new version 4 of the General Patient Pathway for Pediatric and Primary Lymphedema.
This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Lymphatic Malformation Patient Pathway, we invite you to also read the published paper and watch the webinar replay on this pathway.
This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Venous Malformation Patient Pathway, we invite you also to read the published paper and watch the webinar replay on this pathway.
This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management.
This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Severe/Rare Infantile Hemangioma Patient Pathway, we invite you also to read the published paper and watch the webinar replay on this pathway.