Clinical Decision Support Tools
Patient Pathways
Our patient pathways aim to improve the care and management of patients with rare vascular diseases. They include “red flags” that may indicate the presence of the disease, how to reach a definitive diagnosis, and management and follow-up recommendations. They are critical tools for defining the best patient care and will be validated and updated as needed.
These are the deliverables for our Work Package on “Patient Pathways.” VASCERN’s Rare Disease Working Groups are developing disease (or group of disease) specific Patient Pathways.
Results (8)
Pediatric and Primary Lymphedema (PPL) General Patient Pathway (issued 13/04/2023)
May 11 2023
The new version 3 of the General Patient Pathway for Pediatric and Primary Lymphedema.
Lymphatic Malformation Patient Pathway (issued 29/04/2020)
March 27 2023
Venous Malformation Patient Pathway (issued 29/04/2020)
March 27 2023
Capillary Malformation Patient Pathway (issued 29/04/2020)
March 27 2023
Severe/Rare Infantile Hemangioma (issued 20/03/2019)
March 27 2023
MSA Patient Pathway for Vascular Ehlers-Danlos Syndrome (issued 28/09/2018)
March 03 2023
The HHT Patient Pathway (issued 11/07/2017)
February 13 2023
The HTAD Patient Pathway Version 2 (issued 29/08/2019)
January 03 2023