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Registry
Introduction Registry Registry WG
Sub-registries
Hereditary Haemorrhagic Telangiectasia Registry Heritable Thoracic Aortic Diseases Registry Medium Sized Arteries Registry Neurovascular Diseases Registry Pediatric and Primary Lymphedema Registry Vascular Anomalies Registry

Sub-registries

Our registries serve as invaluable tools for gathering and analyzing data, enabling healthcare professionals, researchers, and patients to work together towards better understanding and improved care for patients affected by rare vascular diseases. Here, you can find progress updates on each our rare disease working group registries, and other relevant information related to the collection of data and implementation of these registries.

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