Experts

Robert J. DAMSTRA 16
Chair
Dr. Robert J. DAMSTRA
Dermatologist
Sarah THOMIS
Co-Chair
Pr. Sarah THOMIS
Vascular Surgeon

HEALTHCARE PROVIDER (HCP) FULL MEMBERS


Belgium
AZ Sint-Maarten

PPL European Reference Center, Lymph Center

Robert J. DAMSTRA 13
Dr. Guido GIACALONE
Vascular Surgeon
Florence BELVA
Dr. Florence BELVA
Vascular Surgeon

University Hospitals Leuven

PPL European Reference Center, Leuven Lymphovenous Center

Sarah THOMIS
Pr. Sarah THOMIS
Vascular Surgeon
Nele DEVOOGDT
Dr. Nele DEVOOGDT
Physiotherapist

Denmark
Rigshospitalet

PPL European Reference Centre, Department of Clinical Medicine

Robert J. DAMSTRA 9
Dr. Tonny KARLSMARK
Clinical Associate Professor
Robert J. DAMSTRA 8
Dr. Hanne BUCIEK HOVE
Consultant Clinical Geneticist

Finland
Helsinki University Hospital

PPL European Reference Centre, Department of Plastic Surgery

Sinikka SUOMINEN
Pr. Sinikka SUOMINEN
Plastic Surgeon

France
AP-HP Hôpital Européen Georges Pompidou

PPL European Reference Center, Primary Lymphedema Unit, Hôpital Cognacq-Jay

Stéphane VIGNES 2
Dr. Stéphane VIGNES
Specialist in Internal Medecine Lymphology
Caroline FOURGEAUD 1
Dr. Caroline FOURGEAUD
Vascular Physician

Association Vivre Mieux le Lymphoedème (AVML)

Germany
University Medical Center Freiburg

 PPL European Reference Center, Földi Clinic

Robert J. DAMSTRA 4
Dr. Michael OBERLIN
Specialist in internal medicine Wound Management / Lymphology

Netherlands
Nij Smellinghe hospital

PPL European Reference Center, Expert Center for lymphovascular medecine

Robert J. DAMSTRA 16
Dr. Robert J. DAMSTRA
Dermatologist
Kirsten VAN DUINEN 1
Dr. Kirsten VAN DUINEN
Dermatologist

Portugal
Associação Nacional de Doentes Linfáticos (andLINFA)

Affiliated Partners

There are 2 types of affiliated partners:

  1. Associated National Centres (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
  2. A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.

For all documents related to Affiliated Partners see the Board Statement States page here

Associated National Centers


Slovenia
University Medical Centre Ljubljana

PPL European Reference Center, Dermatovenereological clinic

Tanja PLANINŠEK RUČIGAJ
Dr. Tanja PLANINŠEK RUČIGAJ
Dermatologist
Aleksandra BERGANT 1
Dr. Aleksandra BERGANT SUHODOLČAN
Dermatovenerology Specialist

Collaborating HCPs since Brexit


United Kingdom
Derby Teaching Hospitals NHSF Trust

Paediatric and Primary Lymphedema Department

Vaughan KEELEY 1
Dr. Vaughan KEELEY
Lymphoedema Consultant – Collaborating Expert

St George’s University Hospitals NHS Foundation Trust

Primary and Paediatric Lymphedema Clinic, Dermatology and Clinical Genetics

Sahar MANSOUR 1
Pr. Sahar MANSOUR
Consultant and Honorary Professor in Clinical Genetics – Collaborating Expert
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