Submit A Case CPMS
Home - Network - Working Groups - Rare Disease Working Groups - Pediatric and Primary Lymphedema (PPL-WG) - Clinical Decision Support Tools - Clinical Practice Guidelines (CPGs) adopted
Pediatric and Primary Lymphedema (PPL-WG)
Introduction Diseases covered
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
Research
Clinical Trials and Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars

Clinical Practice Guidelines (CPGs) adopted

The Pediatric and Primary Lymphedema Working Group (PPL-WG) follows (and have generated) existing (national and international) guidelines. The guidelines reflect the latest scientific evidence and are regularly reviewed and updated to ensure they remain up-to-date.

Results (11)
The Dutch lymphedema guidelines based on the International Classification of Functioning, Disability, and Health and the chronic care model
March 29 2023

Damstra RJ, Halk AB; Dutch Working Group on Lymphedema. The Dutch lymphedema guidelines based on the International Classification of Functioning, Disability, and Health and the chronic care model. J Vasc Surg Venous Lymphat Disord. 2017 Sep;5(5):756-765. doi: 10.1016/j.jvsv.2017.04.012. Epub 2017 Jun 30. PMID: 28818234.

PNDS (French National Protocol for care in Rare Disease) for PPL
March 09 2023
Classification and Diagnostic Algorithm for Primary Lymphatic Dysplasia
March 09 2023

The Children’s Lymphoedema Special Interest Group (CLSIG) has produced a Children’s Charter.

Supporting documents and clinic information are available here

St. George’s Paediatric Investigation Tool for patients with primary lymphoedema
March 09 2023

The Children’s Lymphoedema Special Interest Group (CLSIG) has produced a Children’s Charter.

Supporting documents and clinic information are available here

CLSIG Childhood Lymphoedema Diagnostic and Assessment pathways
March 09 2023

The Children’s Lymphoedema Special Interest Group (CLSIG) has produced a Children’s Charter.

Supporting documents and clinic information are available here

Charter of Care for Children and Young People with Lymphoedema
March 09 2023

The Children’s Lymphoedema Special Interest Group (CLSIG) has produced a Children’s Charter.

Supporting documents and clinic information are available here

Report of German Guidelines with all the collaborating members from Germany, Austria and Switzerland
March 09 2023

German guidline “Diagnostis and therapy of lymphedema“: Jörg Wilting, Rolf Bartkowski, Rüdiger Baumeister, Etelka Földi, Susanna Stöhr, Gerson Strubel, Klaus Schrader, Jürg Traber, May 2017

Report of German Guidelines with all the collaborating members from Germany, Austria and Switzerland

German Guidelines: Diagnostics and therapy of lymphedema
March 09 2023

German guideline “Diagnostics and therapy of lymphedema“: Jörg Wilting, Rolf Bartkowski, Rüdiger Baumeister, Etelka Földi, Susanna Stöhr, Gerson Strubel, Klaus Schrader, Jürg Traber, May 2017

S2k Leitlinie – Diagnostik und Therapie der Lymphödeme
March 09 2023

German guideline “Diagnostics and therapy of lymphedema“: Jörg Wilting, Rolf Bartkowski, Rüdiger Baumeister, Etelka Földi, Susanna Stöhr, Gerson Strubel, Klaus Schrader, Jürg Traber, S2k Leitlinie – Diagnostik und Therapie der Lymphödeme AWMF Reg.-Nr. 058-001, May 2017

The German guidelines are published here (organised by by 32 different groups in Germany, Austria and Switzerland).

The Dutch lymphedema guidelines based on the International Classification of Functioning, Disability, and Health and the chronic care model
March 09 2023

Damstra RJ, Halk A-B. The Dutch lymphedema guidelines based on the International Classification of Functioning, Disability, and Health and the chronic care model, Journal of Vascular Surgery, 5 (2017) 756-765. doi:10.1016/j.jvsv.2017.04.012 (contains condensed summary from Dutch 2015 Lymphedema Guidelines)

Update and audit of the St George’s classification algorithm of primary lymphatic anomalies: a clinical and molecular approach to diagnosis
May 14 2020

Gordon K, Varney R, Keeley V, Riches K, Jeffery S, Van Zanten M, Mortimer P, Ostergaard P, Mansour S. Update and audit of the St George’s classification algorithm of primary lymphatic anomalies: a clinical and molecular approach to diagnosis. J Med Genet. 2020 Oct;57(10):653-659. doi: 10.1136/jmedgenet-2019-106084. Epub 2020 May 14. PMID: 32409509; PMCID: PMC7525776.

Skip to content