Our webinars are a unique opportunity for healthcare professionals and patients or caregivers to learn about rare vascular diseases from leading experts in the field. They provide an interactive forum for participants to ask questions and get answers. The webinars are recorded and can be consulted at a later date on our YouTube channel.

Results (2)

VASCERN Webinar: Genetics and Primary Lymphedema
February 28 2023

This video is a question and answer session between Carina Mainka, ePAG patient advocate and mother of a child with primary lymphedema, and Prof. Sahar Mansour, Consultant in Clinical Genetics from St George’s University NHS Hospital on genetics in primary lymphedema.

Prof. Mansour explains how genetics can affect primary lymphedema and the importance of genetic testing for patients and families with questions from Carina.

VASCERN Webinar: Infections and Lymphedema
March 24 2021

This webinar on “Infection and Lymphedema” includes an informative presentation followed by a Q&A session, featuring questions collected from the Pediatric and Primary Lymphedema (PPL) patient community.

Featuring PPL Working Group members: Dr. Kirsten van Duinen, Dr. Tanja Planinšek Ručigaj, Manuela Lourenço Marques (ePAG Deputy Co-Chair for PPL) and Pernille Henriksen (ePAG Co-Chair for PPL).

Please also refer to the accompanying document: Cellulitis Flowchart for Patients with Lymphedema

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