Patient Pathways

Patient Pathways aim to improve the care and management of patients with a rare disease. They include the “red flags” that may lead to the suspicion of the disease, how to reach a definite diagnosis and the management and follow-up recommendations. They are a very important tool used in defining the best patient care and will be further validated and updated when needed.

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General Patient Pathway for Pediatric and Primary Lymphedema (PPL)
October 06 2023

This is version 4 of the General Patient Pathway for Pediatric and Primary Lymphedema. It offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the patient pathway for pediatric and primary lymphedema, we invite you also to read the published paper.

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