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Home - Network - European Patient Advocacy Group (ePAG) - Vascular Anomalies (VASCA)
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Vascular Anomalies (VASCA)

Maria BAREA from Belgium and Petra BORGARDS from Germany serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for HHT, representing patient associations VASCAPA and Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation).

Maria BAREA
ePAG VASCA Co-Chair
Maria BAREA
Patient Advocate
Petra BORGARDS 1
ePAG VASCA Deputy Co-Chair
Petra BORGARDS
Patient Advocate

Other ePAG Patient Advocates


Czech Republic
AVMinority, z.s.

Ireland
LGD Alliance Europe (LGDA)

Netherlands
HEVAS
Maria BAREA 5
Caroline VAN DEN BOSCH
Patient Advocate

CMTC-OVM
Lex VAN DER HEIJDEN
Lex VAN DER HEIJDEN
Patient Advocate

Portugal
Associação Nacional de Doentes Linfáticos (andLINFA)
Maria BAREA 1
Carminda GONÇALVES
Patient Advocate

Other European Patient Organisations


Finland
Harvinaisten sairauksien ja vammojen potilasyhdistysten organisaatio HARSO ry

Suomen Klippel-Trenaunay ry

France
Association Ollier-Maffucci Europe

Association Sturge-Weber France

Agir Pour La Malformation Lymphatique En Alliance

Germany
Interessengemeinschaft Sturge-Weber-Syndrom e.V.

Italy
Fondazione Alessandra Bisceglia ViVa Ale

Netherlands
Nederlandse vereniging van mensen met een Wijnvlek of Sturge-Weber syndroom (Nv WSWs)

Spain
Asociación Española de Cavernomas
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