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Home - Network - European Patient Advocacy Group (ePAG) - Hereditary Haemorrhagic Telangiectasia (HHT)
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Hereditary Haemorrhagic Telangiectasia (HHT)

Paolo FEDERICI from Italy and Luisa BOTELLA from Spain serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for HHT, representing patient associations Associazione Fondazione Italiana HHT Onilde Carini and Asociaciòn HHT España.

Paolo FEDERICI 1
ePAG HHT Co-Chair
Paolo FEDERICI
Patient Advocate
Luisa BOTELLA
ePAG HHT Deputy Co-Chair
Luisa BOTELLA
Patient Advocate

Other ePAG Patient Advocates


France
Amro HHT France

Germany
Morbus Osler Selbsthilfe e.V

Ireland
HHT Ireland

Italy
HHT Europe

HHT Italia aps

Netherlands
Harteraad

Norway
HHT Osler foreningen Norge

Sweden
HHT Sverige

Switzerland
HHT Swiss
Karen TOPAZ DRUCKMAN 1
Karen TOPAZ DRUCKMAN
Patient Advocate

Other European Patient Organisations


Ireland
Grace Nolan Foundation

International Patient Organisations


Canada
HHT Canada THH

United States
Cure HHT
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