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Home - Working Groups - Pediatric and Primary Lymphedema (PPL-WG) - Registry
Pediatric and Primary Lymphedema (PPL-WG)
Introduction Diseases covered
RDWG’s Members
Members Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
Pills of Knowledge (PoK) Webinars

Registry

The PPL-WG Registry project will consist of the creation of a FAIR registry dedicated to the diseases covered by the PPL-WG, with the same aims, organisation and steps as the VASCA Registry. In addition, the PPL Working Group will benefit from the progress made by the VASCA Working Group, as PPL will use the same server, program, and development strategy as VASCA.

More information on the Registry page here.

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