Clinicians only - cpms CPMS
Home - Working Groups - Pediatric and Primary Lymphedema (PPL-WG) - Registry
Pediatric and Primary Lymphedema (PPL-WG)
Introduction Diseases covered
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
Research
Clinical Trials and Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars

Registry

The VASCERN Registry is an essential tool that offers a centralized repository for clinical data and information related to rare vascular diseases. By gathering clinical data, the registry aims to improve research, diagnosis, and care for patients. With standardized data collection and collaboration among healthcare professionals, researchers, and patients, the registry empowers personalized treatment, fosters innovation, and enhances patient care.

The PPL-WG Registry project will consist of the creation of a FAIR registry dedicated to the diseases covered by the PPL-WG, with the same aims, organisation and steps as the VASCA Registry. In addition, the PPL Working Group will benefit from the progress made by the VASCA Working Group, as PPL will use the same server, program, and development strategy as VASCA.

More information on the PPL-WG registry is available on the Registry page here.

Skip to content