Patient Registry WG

Flag_of_Belgium.svg

BELGIUM

Dr. Sarah THOMIS
Lymphovenous Center
University Hospitals Leuven
Leuven, Belgium

Civil_and_Naval_Ensign_of_France.svg

FRANCE

Dr. Sophie DUPUIS-GIROD
CRMR Rendu-Osler Disease HHT Center of Reference
CHU de Lyon HCL – GH Est-Hôpital Femme Mère Enfant
Lyon, France

allemagne

GERMANY

Dr. Christian-Alexander BEHRENDT
Department of Vascular Medicine
Department of General and Interventional Cardiology
University Heart Center Hamburg
University Medical Center Hamburg-Eppendorf
Rarevasc.org
Hamburg, Germany

Flag_of_Hungary.svg

HUNGARY

Dr. Kalman BENKE
Semmelweis University, Heart and Vascular Center
Budapest, Hungary

Flag_of_Ireland.svg

IRELAND

Pr. Alan IRVINE
Dermatology Department
Our Lady’s Children’s Hospital Crumlin
Dublin, Ireland

Flag_of_Italy.svg

ITALY

Patient representative

Claudia CROCIONE
HHT Europe
Associazione Italiana Teleangectasia Emorragica – HHT ONLUS

Dr. Alessandro PINI
Centro Malattie Rare Cardilogiche,
Azienda Socio Sanitaria Territoriale Fatebenefratelli – Sacco
Milan, Italy

Flag_of_the_Netherlands.svg

NETHERLANDS

Pr. Leo SCHULTZE KOOL
Expertcenter for Hemangioma and Vascular Anomalies (Hecovan)
Dr. Marlies KEMPERS
Klinisch Geneticus
Radboud university medical center
Nijmegen, Netherlands

Dr Ingrid VAN DE LAAR
Erasmus Medical Center
Rotterdam, Netherlands

Centers cooperating with Patient Registry WG

Flag_of_Spain.svg

SPAIN

Dr. Eulalia BASELGA TORRES
Clinical Director of the Pediatric Dermatology Unit
Director of the Vascular Clinic
Hospital de la Santa Creu i Sant Pau
Barcelona, Spain

Pr. Arturo EVANGELISTA
Head of Cardiac Imaging Department
Dr. Gisela TEIXIDO
Unidad del Síndrome de Marfan
Hospital Universitari Vall d´Hebron
Barcelona, Spain