Quite every part of the ERN is related to Information and Communications Technology (ICT) solutions. ICT improves and enhances the intrinsic ERN value for the Patients benefit. ICT could allow the sharing of data within and between Centers within the ERN but also – when strategic – among ERNs. ICT is the present and future for the trainig/learning programs for clinicians and a useful media for the patient information. Inasmuch, modern communication would not be possible without taking full advantage of the opportunities offered by ICT. Needless to say, ICT is also a fundamental tool for research and innovation.







Asociación HHT España



Ben GLAMPSON (team member)
Dr. Claire SHOVLIN (HCP representative)
HHT Centre and Service
Hammersmith Hospital, Imperial College Healthcare NHS Trust
London, UK


Center cooperating with eHeath WG



Clinical Director of the Pediatric Dermatology Unit
Director of the Vascular Clinic
Hospital de la Santa Creu i Sant Pau
Barcelona, Spain


As a Transversal WG, e-Health has to work closely with all the RDWGs about every single item and strategy in order to get the target. Similarly, e-Health WG must interact with all the other Transversal WGs to share common strategies and develop a proper basis to support with ICT their activities.

The proposed items should therefore be enlisted on the basis of strategic priorities within the target of the ERN but each one has both an intrinsic and a common added value that should be considered within the planning of activities and targets to be obtained in the mid term by the ERN.

There is a main element to be considered over every item presented, as related to the main objectives of the EU: multilingual, multicultural offer of health services. And so this WG will support implementation of every single item with a multi-language structure in order to make their use easy and balanced across populations, also including minorities.  Similarly, every item should be considered as usable by means of PC and mobile devices (smartphone phablets, or tablets) irrespectively of the Operating System or Hardware platform.

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