Focus on the ERNs in the Health-EU newsletter!

An interview with the Chair of the ERN Coordinators, Dr Franz Schaefer (from Heidelberg University), appears in this month’s Health-EU newsletter! In this article Dr Schaefer describes how the ERNs currently work and how involvement from local, regional and national healthcare providers, with the help of patient organisations, is so important…

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First Central-Eastern European Marfan Symposium

The first Central-Eastern European Marfan Symposium took place on Friday October 26th, 2018 in Budapest, Hungary. This symposium, focused on Marfan syndrome, was organised by two members of VASCERN’s Heritable Thoracic Aortic Working Group (HTAD-WG), Prof. Zoltán Szabolcs and Dr Kálmán Benke (with fellow members of the Hungarian Marfan Foundation), from the…

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Rare Disease Day 2019 theme announced!

The theme for Rare Disease Day 2019 was announced this month and it is a very important one for the rare disease community: Bridging health and social care! “The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in…

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VASCERN DAYS 2018 is almost here!

The much anticipated event is almost here: VASCERN Days 2018 will take place next week, from October 11-12, 2018, in Paris, France! VASCERN’s second annual seminar will be a chance for all of our members to meet face to face and reflect on all of the hard work that has been…

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