The VASCERN coordination team, located in Paris, France, is looking for a full-time IT Helpdesk/End-User Support Specialist and a full-time Data Manager. Read the full job descriptions (in English and French): Job offer: VASCERN – IT HELP DESK END-USER SUPPORT SPECIALIST (EN-FR)- Sept 2018 Job offer: VASCERN Data manager (EN-FR) – Sept…
On 25 September 2018, the Expert Panel on Effective ways of Investing in Health will organise a Hearing on the application of the ERN model in European cross-border healthcare cooperation outside the rare diseases area (webstreamed). Read the Opinion on 22 Application of the ERN model in European cross border…
The European Commission and the Innovation and Networks Executive Agency have launched the 2018 Connecting Europe Facility Telecom Call for proposals, on June 28th. This call aims to support the deployment of European Digital Service Infrastructures (DSIs), including, for the European Reference Networks on Rare Diseases: eHealth – improve cross-border healthcare access and…
The EU budget post 2020 (Multiannual Financial Framework 2021-2027) proposal has been adopted by the European Commission. For the European Reference Networks, there will be funding available from the ESF+, Horizon Europe (post Horizon 2020 Programme for Research and Development) and Digital Europe. Source: factsheet EU Health Budget for the Future…
Since March, 1st 2018, VASCERN has started its second year of activities under the 5 Year Framework Partnership Agreement (FPA)! This second year (March 2018-February 2019) will be covered by the Specific Grant Agreement (SGA) for Year 2, currently under preparation with CHAFEA (The Consumers, Health, Agriculture and Food Executive…
VASCERN is a European Reference Network, an EU Project co-funded by the European Union 3rd Health Programme. Under the 5 year Framework Partnership Agreement (FPA) with the European Commission, VASCERN has signed a Specific Grant Agreement (SGA) for its first year of activities as an official ERN. As February is our Month…
VASCERN (as well as other European Reference Networks for rare diseases) has answer to the Connecting Europe Facility Telecom Call 2017 on eHealth for ERNs last September. VASCERN’s proposal as well as other ERNs proposals have been selected for Funding! Next steps are the Preparation and signature of the grant agreements by June…
The European Commission has adopted the 2018 Annual Workplan for the 3rd EU Public Health Programme. EU Funding and calls linked to the European Reference Networks and Rare Diseases are the following: OrphaCodes, to support the implementation of OrphaCodes for rare diseases by Member States – EUR 750 000 (p. 16) Multiannual…
We are proud to report that a new publication by our HHT-WG Chair Prof Claire Shovlin, the British Thoracic Society Clinical Statement on Pulmonary Arteriovenous Malformations, is now available. Pulmonary arteriovenous malformations (PAVMs) are abnormal blood vessels that connect pulmonary arteries directly to pulmonary veins, creating an anatomic right-to-left shunt,…
The much anticipated Clinical Patient Management System (CPMS) was released by the European Commission (DG SANTE) on Monday, November 20th, 2017 at 12:00 CET! This secure web-based application will be the platform where healthcare professionals from the European Reference Networks (ERNs) discuss real patient cases. The first few months will…
