Thanks to the Clinical Patient Management System (CPMS), members of the Vascular Anomalies (VASCA) Working Group have recently been able to discuss two guest patient cases from Portugal and Serbia (countries with no VASCERN Healthcare Provider (HCP) member) and offer valuable advice to the treating physicians in order to help these patients in their respective countries.
The healthcare professionals from Serbia and Portugal sent in their individual requests, via our CPMS contact e-mail – firstname.lastname@example.org, to discuss a complex vascular malformation case with VASCERN’s experts.
Professor Leo Schultze Kool, VASCA WG Co-Chair from the Netherlands, was the panel lead for both cases and each patient’s case was discussed with other members of the VASCA WG (including Chairs Professors Miikka Vikkula and Laurence Boon from Belgium and Professor Päivi Salminen from Finland). Once the group of experts had agreed on the best solution for each patient with a particular vascular malformation, they produced outcome reports that were then sent to each of the treating physicians.
These two cases showcase the value of the European Reference Networks’ virtual clinic using the CPMS in providing accessible cross-border healthcare to all rare disease patients in Europe. Thanks to the advice of the VASCA-WG experts, these two patients are now receiving the best treatment possible for their individual conditions locally.
If you would like to discuss a case with VASCERN’s experts using the CPMS, follow the instructions on the CPMS information page here