During the HHT Europe annual meeting, which took place in Hamburg this month, the HHT patient organisations members of our VASCERN ePAG for HHT had a face-to-face meeting. The ePAG for HHT is chaired by Claudia Crocione from HHT Europe.
Christina Grabowski, ePAG representative for HHT Germany (Morbus Osler) within the VASCERN ePAG (European Patient Advocacy Group) was elected as new President of HHT Europe (Federation of patient organisations for HHT) during this HHT Europe annual meeting.
More information about the ePAG (European Patient Advocacy Group) here
More information about VASCERN ePAG here