Webinars

Our webinars are a unique opportunity for healthcare professionals and patients or caregivers to learn about rare vascular diseases from leading experts in the field. They provide an interactive forum for participants to ask questions and get answers. The webinars are recorded and can be consulted at a later date on our YouTube channel.

Results (5)
























Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2
May 23 2023

In this webinar, Prof Tristan Mirault, Professor of Vascular Medicine from AP-HP Hôpital Européen Georges Pompidou, Dr. Anna Stenborg, Physician from Uppsala University Hospital, and Eva Collado, a vEDS patient advocate and Vice President of the Spanish Patient Organization for Ehlers-Danlos Syndromes and Hypermobility came together to address pressing questions submitted by vEDS patients across Europe.

Throughout the webinar, our experts addressed a wide range of topics related to vascular Ehlers-Danlos syndrome such as Pregnancy, Genetics, Dealing with vEDS, Medication and Research, and more.


Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 1
April 18 2023

In this webinar, Prof Tristan Mirault, Professor of Vascular Medicine from AP-HP Hôpital Européen Georges Pompidou, Dr. Anna Stenborg, Physician from Uppsala University Hospital, and Eva Collado, a vEDS patient advocate and Vice President of the Spanish Patient Organization for Ehlers-Danlos Syndromes and Hypermobility came together to address pressing questions submitted by vEDS patients across Europe.

Throughout the webinar, our experts addressed a wide range of topics related to vascular Ehlers-Danlos syndrome such as Pregnancy, Genetics, Dealing with vEDS, Medication, and more.


VASCERN Webinar: On collagen, Ehlers-Danlos Syndromes and vascular fragility: what’s in a name?
March 03 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Involving Dr. Fransiska Malfait, Co-Chair of our Medium-Sized Arteries Working Group.

Video in English.


VASCERN Webinar: Pregnancy and PGD in Vascular Ehlers Danlos Syndrome
March 03 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Involving Dr. Michael Frank, Chair of our Medium-Sized Arteries Working Group.

Video in English.


VASCERN & ReCONNET Webinar: Cardiovascular aspects of EDS by Leema Robert and Fransiska Malfait
March 03 2023

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