Patient Pathways

Patient Pathways aim to improve the care and management of patients with a rare disease. They include the “red flags” that may lead to the suspicion of the disease, how to reach a definite diagnosis and the management and follow-up recommendations. They are a very important tool used in defining the best patient care and will be further validated and updated when needed.

Results (3)

Percoso Del Paziente: Ehlers-Danlos vascolare (vEDS) (MSA)
March 20 2023

Patient Pathway for Vascular Ehlers-Danlos Syndrome
September 28 2018

This document is an opinion statement reflecting strategies put forward by experts and patient representatives involved in the Medium Sized Arteries (MSA) Rare Disease Working Group of VASCERN.

Medium Sized Arteries Parcours Patient pour le Syndrôme d’ Ehlers-Danlos vasculaire (vEDS) FR
September 28 2018

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