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Heritable Thoracic Aortic Diseases (HTAD-WG)
Introduction
Disease Information
Overview Genetic Testing for Hereditary Thoracic Aortic Aneurysm Disease Familial Thoracic Aortic Aneurysm and Dissection (Familial TAAD) Marfan Syndrome
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Outcome Measures
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars
Sub Working Groups
Aortic Imaging Gene Compendium Pediatrics Variants

Outcome Measures

The HTAD-WG has developed patient outcome measures to maximize the number of patients receiving good care. They are working to develop patient-reported outcome measures (PROM).

Result (1)
Patient-centered Quality Outcome Measures of Heritable Thoracic Aortic Disease Care
September 08 2023
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