Submit A Case CPMS
Home - Network - Working Groups - Rare Disease Working Groups - Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG) - Training and Education - Pills of Knowledge
Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG)
Introduction Disease Information
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines Expert Consensus Statements Outcome Measures
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge Webinars
Projects/Initiatives
Based on Evidence European (BEE) Meeting
First Edition BEE Meeting | 25th May, 2023

Pills of Knowledge

Pills of Knowledge (PoK) are defined as short single video lessons (of approximately 3-5 minutes long) in which an expert talks about a specific topic that has been selected and validated by the Rare Disease Working Groups (RDWGs).

HHT-WG Pills of Knowledge videos playlist here

Results (15)
Hereditaire haemorrhagische teleangiectasieen van VASCERN HHT
April 14 2023
Een overzicht van HHT, Prof. Claire Shovlin
April 14 2023
La maladie de Rendu-Osler par le groupe VASCERN HHT
April 12 2023
Oversættelse af Vascern
April 06 2023
En oversigt over HHT, Prof. Claire Shovlin
April 06 2023
Hereditäre hämorrhagische Telangiektasie von VASCERN HHT
March 20 2023
Ein Überblick über HHT, Prof. Claire Shovlin
March 20 2023
Un panorama de la maladie Télangiectasie hémorragique héréditaire, ou de la maladie de Rendu-Osler, Prof. Claire Shovlin
March 20 2023
VASCERN HHT surge para ayudar a las personas con Telangiectasia Hemorrágica Hereditaria (HHT)
March 20 2023
Una visión general de HHT, Prof. Claire Shovlin
March 20 2023
HHT from VASCERN HHT
March 20 2023
Una panoramica di HHT, Prof. Claire Shovlin
March 20 2023
Hereditary Haemorrhagic Telangiectasia (HHT) is more than a bleeding Nose. What an ENT doctor needs to know about HHT and why
February 13 2023

Hereditary Haemorrhagic Telangiectasia (HHT) is more than a bleeding Nose. What an ENT doctor needs to know about HHT and why is made by Prof Anette Kjeldsen (HHT-WG Member, from the HHT Centre at Odense University Hospital, Denmark) and is intended for Ear, Nose & Throat (ENT) Doctors in order to help them properly recognize the signs and symptoms of HHT. As ENT doctors are often the first healthcare professionals that HHT patients consult, it is essential for them to be able to identify a potential HHT patient and refer these patients to an HHT expert Centre for screening and treatment in order to decrease patient morbidity.

Video in English.

An Overview of Hereditary Haemorrhagic Telangiectasia
February 13 2023

An Overview of Hereditary Haemorrhagic Telangiectasia features an informative presentation by Prof Claire Shovlin (Chair of the HHT WG from Hammersmith Hospital – Imperial College Healthcare NHS Trust, UK). This PoK is accessible to everyone and gives viewers an introduction to HHT by explaining its main clinical features (and their frequency) in addition to the genetics and aetiology of this rare disease.

Video in English. Subtitles available in 7  languages (English, Dutch, Danish, French, Italian, German and Spanish).

Hereditary Haemorrhagic Telangiectasia (HHT) from VASCERN HHT-WG
February 13 2023

This video introduces HHT, the HHT-WG and their expertise in this rare vascular disease. This is a welcoming first entry for people learning about HHT for the first time.  Common problems of HHT are presented.  The video also presents the data derived over more than 30 years by HCP Leads within VASCERN HHT that indicates life expectancy in HHT is remarkably good, provided that patients are properly screened and receive the benefits of modern medicine. This video is mainly directed at HHT patients but is also of interest to the medical community and the general public wishing to learn more about HHT and the HHT-WG in VASCERN. Video in English. Subtitles available in 7  languages (English, Dutch, Danish, French, Italian, German and Spanish).

Skip to content