Submit A Case CPMS
Home - Network - Working Groups - Rare Disease Working Groups - Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG) - Clinical Decision Support Tools - Expert Consensus Statements
Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG)
Introduction Disease Information
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines Expert Consensus Statements Outcome Measures
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge Webinars
Projects/Initiatives
Based on Evidence European (BEE) Meeting
First Edition BEE Meeting | 25th May, 2023

Expert Consensus Statements

Expert consensus statements play a critical role in guiding clinical decision-making and improving patient outcomes. Our experts in rare vascular diseases develop consensus statements drawing from the latest research and clinical data to provide evidence-based recommendations for the diagnosis, treatment and management of these diseases.

The Hereditary Hemorrhagic Telangiectasia Working Group (HHT-WG) have developed consensus statements providing valuable insights and recommendations for the management of HHT, bridging gaps where evidence may be limited and consensus is essential.

Browse our collection of HHT Expert Consensus Statements below.

Results (4)
VASCERN Hereditary Haemorrhagic Telangiectasia (HHT) Working Group – Statement concerning SARS-CoV-2 vaccination for patients with HHT
February 04 2021
VASCERN Hereditary Haemorrhagic Telangiectasia (HHT) Statement on COVID-19
February 04 2021

Claire L. Shovlin, Carlo Sabba, Hans Jurgen Mager, Anette Kjeldsen, Ulrich Sure, Elisabetta Buscarini and Sophie Dupuis-Girod.

European Reference Network for Rare Vascular Diseases (VASCERN) position statement on cerebral screening in adults and children with hereditary haemorrhagic telangiectasia (HHT)
June 29 2020

Eker OF, Boccardi E, Sure U, Patel MC, Alicante S, Alsafi A, Coote N, Droege F, Dupuis O, Fialla AD, Jones B, Kariholu U, Kjeldsen AD, Lefroy D, Lenato GM, Mager HJ, Manfredi G, Nielsen TH, Pagella F, Post MC, Rennie C, Sabbà C, Suppressa P, Toerring PM, Ugolini S, Buscarini E, Dupuis-Girod S, Shovlin CL. European Reference Network for Rare Vascular Diseases (VASCERN) position statement on cerebral screening in adults and children with hereditary haemorrhagic telangiectasia (HHT). Orphanet J Rare Dis. 2020 Jun 29;15(1):165. doi: 10.1186/s13023-020-01386-9. PMID: 32600364; PMCID: PMC7322871.

Liver involvement in hereditary hemorrhagic telangiectasia: consensus recommendations
November 26 2006

Buscarini E, Plauchu H, Garcia Tsao G, White RI Jr, Sabbà C, Miller F, Saurin JC, Pelage JP, Lesca G, Marion MJ, Perna A, Faughnan ME. Liver involvement in hereditary hemorrhagic telangiectasia: consensus recommendations. Liver Int. 2006 Nov;26(9):1040-6. doi: 10.1111/j.1478-3231.2006.01340.x. PMID: 17032403.

Skip to content