The VASCERN Pregnancy and Family Planning Working Group (WG) is a transversal WG of VASCERN, coordinated by Professor Julie De Backer (Chair), Professor Guillaume Jondeau (Co-Chair) and Petra Borgards (ePAG representative), that deals with issues specifically related to pregnancy and the diseases of our five Rare Disease Working Groups.

The group meets every three months and liaises with the inter-ERN Transversal Working Group on Pregnancy and Family Planning. The aim is to stimulate research in the field of pregnancy and rare diseases, deliver specific Clinical Practice Guidelines for pregnancy planning and management, develop education and information for patient and healthcare professional and collect European-wide evidence on pregnancy management.

Skip to content