Chair
Dr. Robert J. DAMSTRA
Dermatologist
Paediatric & Primary Lymphoedema (PPL-WG)
Experts
Co-Chair
Pr. Sarah THOMIS
Vascular Surgeon
HEALTHCARE PROVIDER (HCP) FULL MEMBERS
University Medical Center Freiburg
PPL European Reference Center, Földi Clinic
Dr. Michael OBERLIN
Specialist in internal medicine Wound Management / Lymphology
Associação Nacional de Doentes Linfáticos (andLINFA)
Manuela LOURENÇO MARQUES
ePAG PPL Co-Chair
Affiliated Partners
There are 2 types of affiliated partners:
- Associated National Centres (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
- A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.
For all documents related to Affiliated Partners see the Board Statement States page here
Associated National Centers
Collaborating HCPs since Brexit
Derby Teaching Hospitals NHSF Trust
Paediatric and Primary Lymphedema Department
Dr. Vaughan KEELEY
Lymphoedema Consultant – Collaborating Expert
St George’s University Hospitals NHS Foundation Trust
Primary and Paediatric Lymphedema Clinic, Dermatology and Clinical Genetics
Pr. Sahar MANSOUR
Consultant and Honorary Professor in Clinical Genetics – Collaborating Expert