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Home - Network - Working Groups - Rare Disease Working Groups - Paediatric & Primary Lymphoedema (PPL-WG) - Experts & Centers - Full Members
Paediatric & Primary Lymphoedema (PPL-WG)
Introduction Diseases covered
Experts & Centers
Full Members Affiliated Partners Developing Partners Map of Centres
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
Research
Clinical Trials and Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars

Full Members

Working Group Leads

Robert J. DAMSTRA 16
Chair
Dr. Robert J. DAMSTRA
Dermatologist
Pubmed
Sarah THOMIS
Co-Chair
Pr. Sarah THOMIS
Vascular Surgeon
Pubmed

Members

Belgium
AZ Sint-Maarten, Mechelen

PPL European Reference Center, Lymph Center

Robert J. DAMSTRA 13
Dr. Guido GIACALONE
Vascular Surgeon
Pubmed
Florence BELVA
Dr. Florence BELVA
Vascular Surgeon
Pubmed
UZ Leuven, Leuven

PPL European Reference Center, Center for Lymphedema

Sarah THOMIS
Pr. Sarah THOMIS
Vascular Surgeon
Pubmed
Denmark
Bispebjerg Hospital, Copenhagen

PPL European Reference Centre, Department of Dermatology and Wound Healing Centre

Robert J. DAMSTRA 9
Dr. Tonny KARLSMARK
Clinical Associate Professor
Pubmed
Hanne BUCIEK HOVE
Dr. Hanne BUCIEK HOVE
Consultant Clinical Geneticist
Pubmed
Finland
Helsinki University Hospital, Helsinki

PPL European Reference Centre, Department of Plastic Surgery

Sinikka SUOMINEN
Pr. Sinikka SUOMINEN
Plastic Surgeon
Pubmed
Dr. Susanna KAUHANEN
Plastic Surgery Specialist
Pubmed
France
AP-HP Hôpital Européen Georges Pompidou, Paris

PPL European Reference Center, Hôpital Cognacq-Jay

Stéphane VIGNES 2
Dr. Stéphane VIGNES
Specialist in Internal Medecine Lymphology
Pubmed
Caroline FOURGEAUD 1
Dr. Caroline FOURGEAUD
Vascular Physician
Pubmed
Association Vivre Mieux le Lymphoedème (AVML)
Germany
University Medical Center Freiburg, Freiburg

 PPL European Reference Center, Földi Clinic

Robert J. DAMSTRA 4
Dr. Michael OBERLIN
Specialist in internal medicine Wound Management / Lymphology
Pubmed
Netherlands
Nij Smellinghe Hospital, Drachten

PPL European Reference Center, Expertise Center for Lymphovascular Medicine

Robert J. DAMSTRA 16
Dr. Robert J. DAMSTRA
Dermatologist
Pubmed
Kirsten VAN DUINEN 1
Dr. Kirsten VAN DUINEN
Dermatologist
Pubmed
Portugal
Associação Nacional de Doentes Linfáticos (andLINFA)

Collaborating HCPs since Brexit

United Kingdom
Derby Teaching Hospitals NHSF Trust, Derby

Paediatric and Primary Lymphedema Department

Vaughan KEELEY 1
Dr. Vaughan KEELEY
Lymphoedema Consultant – Collaborating Expert
Pubmed
St George’s University Hospitals NHS Foundation Trust, London

Primary and Paediatric Lymphedema Clinic, Dermatology and Clinical Genetics

Sahar MANSOUR 1
Pr. Sahar MANSOUR
Consultant and Honorary Professor in Clinical Genetics – Collaborating Expert
Pubmed
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