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Resources
2018 ESC Guidelines for the management of cardiovascular diseases during pregnancy - 2023-04-18 Before Pregnancy - 2023-01-03 Do’s & Don’ts for Marfan Syndrome: Before Pregnancy - 2018-09-17 Do’s & Don’ts Pregnancy, Delivery and Postpartum care – Before Pregnancy in Marfan Syndrome – 17/09/2018 (Do’s & Don’ts for Marfan Syndrome: Before Pregnancy) - 2023-03-09 During Pregnancy - 2023-01-03 Exciting New Pill of Knowledge Videos on Pregnancy and Lymphedema (Exciting New Pill of Knowledge Videos on Pregnancy and Lymphedema) - 2023-08-31 GenTAC Webinar: Family Planning and Pregnancy – US and Europe Perspectives - 2023-03-12 Management of pregnancy in women with genetic disorders, Part 1: Disorders of the connective tissue, muscle, vascular, and skeletal systems - 2023-03-03 Organisation of care for pregnancy in patients with congenital heart disease - 2023-03-28 Pregnancy - 2023-03-17 Pregnancy - 2023-01-03 Pregnancy (Pregnancy delivery and postpartum care in vEDS – Pregnancy) - 2023-03-09 Pregnancy (Do’s and Don’ts) - 2023-03-03 Pregnancy - 2018-09-19 Pregnancy (New VASCERN Pregnancy and Family Planning WG page!) - 2023-03-17 Pregnancy and Lymphedema - 2023-03-09 Pregnancy and Lymphedema FAQ Danish - 2023-08-08 Pregnancy and Lymphedema FAQ Dutch - 2023-08-08 Pregnancy and Lymphedema FAQ French - 2023-08-08 Pregnancy and Lymphedema FAQ German - 2023-08-08 Pregnancy and Lymphedema FAQ Portuguese - 2023-08-21 Pregnancy and Lymphedema FAQ Spanish - 2023-08-08 Pregnancy and Lymphodema - 2023-08-02 Pregnancy and Lymphoedema FAQ Bulgarian - 2023-08-08 Pregnancy and Lymphoedema FAQ English - 2023-08-08 Pregnancy and Lymphoedema FAQ Italian - 2023-08-08 Pregnancy and Lymphoedema FAQ Norwegian - 2023-08-08 Pregnancy and Lymphoedema FAQ Swedish - 2023-08-08 Pregnancy and Thoracic Aortic Disease: Managing the Risks - 2023-04-18 Pregnancy delivery and postpartum care in Marfan Syndrome – Delivery - 2023-01-03 Pregnancy delivery and postpartum care in Marfan Syndrome – During Pregnancy - 2023-01-03 Pregnancy delivery and postpartum care in Marfan Syndrome – Postpartum care - 2023-01-03 Pregnancy delivery and postpartum care in PPL – Pregnancy and Lymphedema - 2023-03-09 Pregnancy delivery and postpartum care in vEDS – Breastfeeding - 2023-03-09 Pregnancy delivery and postpartum care in vEDS – Pregnancy - 2023-01-03 Pregnancy delivery and postpartum care in vEDS-Delivery - 2023-03-09 Pregnancy delivery and postpartum care_Before Pregnancy (Do’s and Don’ts) - 2023-03-07 Pregnancy delivery and postpartum care_Before Pregnancy - 2018-09-19 Pregnancy delivery and postpartum care_Delivery (Do’s and Don’ts) - 2023-03-07 Pregnancy delivery and postpartum care_Delivery - 2018-09-19 Pregnancy delivery and postpartum care_During Pregnancy - 2018-09-19 Pregnancy delivery and postpartum care_During Pregnancy (Do’s and Don’ts) - 2023-03-07 Pregnancy delivery and postpartum care_Postpartum care (Do’s and Don’ts) - 2023-03-07 Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 1 - 2023-01-03 Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 2 – Is In Vitro Fertilisation (IVF) safe in vEDS patients? - 2023-01-03 Pregnancy in Women With SMAD3 Mutation - 2023-03-28 Pregnancy Series: Delivery/Postpartum Care in Pediatric and Primary Lymphedema - 2023-08-08 Pregnancy Series: Family Planning in Pediatric and Primary Lymphedema - 2023-08-08 Pregnancy Series: Pregnancy in Pediatric and Primary Lymphedema - 2023-08-08 Pregnancy, delivery and postpartum care in Marfan Syndrome – Delivery - 2023-01-03 Pregnancy-2 - 2023-03-20 Pregnancy-and-Lymphedema (Pregnancy and Lymphedema) - 2023-03-09 Pregnancy-and-Lymphedema-1 - 2023-03-20 Pregnancy-delivery-and-postpartum-care_Before-Pregnancy (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_Before-Pregnancy (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_Before-Pregnancy - 2023-03-20 Pregnancy-delivery-and-postpartum-care_Delivery - 2023-03-20 Pregnancy-delivery-and-postpartum-care_Delivery (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_Delivery (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_Delivery (1) (Do’s & Don’ts for Marfan Syndrome: Before Pregnancy) - 2023-03-09 Pregnancy-delivery-and-postpartum-care_During-Pregnancy - 2023-03-20 Pregnancy-delivery-and-postpartum-care_During-Pregnancy (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_During-Pregnancy (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_During-Pregnancy (1) (Do’s & Don’ts for Marfan Syndrome: Before Pregnancy) - 2023-03-09 Pregnancy-delivery-and-postpartum-care_Postpartum-care (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_Postpartum-care (Heritable Thoracic Aortic Diseases (HTAD-WG)) - 2023-01-02 Pregnancy-delivery-and-postpartum-care_Postpartum-care - 2023-03-20 Pregnancy-delivery-and-postpartum-care_Postpartum-care (1) (Do’s & Don’ts for Marfan Syndrome: Before Pregnancy) - 2023-03-09 Programme-for-Aortopathy-and-Pregnancy-meeting-240418 - 2023-03-20 Recording of the VASCERN webinar: Pregnancy and PGD in Vascular Ehlers-Danlos Syndrome now available! - 2023-03-12 VASCERN Webinar: Pregnancy and PGD in Vascular Ehlers Danlos Syndrome - 2023-03-03 VASCERN-Webinar-Pregnancy-and-PGD-300×300-1 - 2023-03-20 What to know before and during pregnancy in HTAD - 2023-01-03
News
A day of collaboration at the PPL Spring meeting 2023 A Recap of the MSA Spring Meeting Advancing HHT Knowledge: Highlights from the HHT Based on Evidence European (BEE) Meeting Exciting New Pill of Knowledge Videos on Pregnancy and Lymphedema GenTAC Webinar: Family Planning and Pregnancy – US and Europe Perspectives Highlights from the NEUROVASC-WG Spring Meeting 2023 Highlights from the VASCERN Heritable Thoracic Aortic Diseases (HTAD) Working Group Spring Meeting 2024 Highlights of the VASCERN Pediatric and Primary Lymphedema Working Group Spring Meeting 2024 Join Our Upcoming Webinar: HHT and Pregnancy – Register Now! New E-Learning Course on Vascular Ehlers-Danlos Syndrome New Insights into Ehlers-Danlos Syndrome with Phenotype of COL3A1/COL5A2 Deletion New VASCERN Pregnancy and Family Planning WG page! Recap of the Heritable Thoracic Aortic Diseases Spring Meeting Recap of the Pediatric and Primary Lymphedema Working Group (PPL WG)’s Virtual Spring Meeting 2021 Recording of the VASCERN webinar: Pregnancy and PGD in Vascular Ehlers-Danlos Syndrome now available! Recording of webinar on Pregnancy and Primary Lymphedema Reflecting on VASCERN Days 2023: Two days of collaboration & knowledge exchange Research News: New HTAD collaborative publication on pregnancy outcomes in thoracic aortic disease Update from the Pediatric and Primary Lymphedema Working Group (PPL WG)’s Spring Meeting 2022 Vascular Ehlers Danlos Syndrome (vEDS) Q&A Webinar Replay Now Available on YouTube! Watch Now: HHT and Pregnancy Webinar Replay Available on YouTube
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