We are thrilled to announce that the highly anticipated replay of our Vascular Ehlers Danlos Syndrome (vEDS) Question and Answer Webinar “Everything you wanted to know about vEDS Part 2” is now live on YouTube! On May 23rd, 2023, the Medium Sized Arteries (MSA) Working Group hosted an extraordinary webinar that brought together vEDS patients, clinicians, and caregivers from across Europe for an insightful and empowering session.
The Q&A Webinar was a remarkable endeavor aimed at fostering knowledge, providing support, and creating a sense of community among vEDS warriors. This engaging session featured a distinguished panel comprising two experienced clinicians: Prof Tristan Mirault, Professor of Vascular Medicine from AP-HP Hôpital Européen Georges Pompidou and Dr. Anna Stenborg, Physician from Uppsala University Hospital, and Eva Collado, a vEDS patient advocate and Vice President of the Spanish Patient Organization for Ehlers-Danlos Syndromes and Hypermobility. Participants were eager to gain valuable insights into various aspects of vEDS, and our panel left no stone upturned in addressing their questions.
Throughout the webinar, attendees had their pressing questions answered, covering topics such as:
💠 Genetics
💠 Lifestyle
💠 Medication and Research
💠 Risk and Intervention
💠 Pregnancy
💠 And More
For those who missed the live session or wish to revisit the insightful discussions, the Q&A Webinar Replay is now available on our YouTube channel.
You can also click here to watch the full replay and gain a wealth of knowledge on vEDS management, treatments, and support.
We encourage all vEDS patients, caregivers, and medical professionals to watch and share this invaluable resource. By raising awareness and providing support, we strengthen the vEDS community and foster a future of hope and understanding.
We extend our heartfelt appreciation to all participants and contributors, making this webinar a resounding success.