Members
Meet the dedicated members of our Psychology Group, each bringing a wealth of experience and expertise to the table. From seasoned psychologists shaping the landscape of mental health in rare diseases to clinicians dedicated to improving doctor-patient communication, and patient representatives advocating for holistic care—we are a united force committed to making a difference.
HTAD European Reference Center, Reference Center Marfan Syndrome and Related Conditions
HHT European Reference Center, Rendu-Osler Disease Reference Center
PPL European Reference Center, Hôpital Cognacq-Jay
HHT European Reference Center, Universitätsklinikum Marburg Angioma Center

NEUROVASC European Reference Center, Neurology Clinic

HTAD European Reference Center, German Aortic Center Hamburg

NEUROVASC European Reference Center, Department of Clinical Neuroscience

HTAD European Reference Center, Department of Cardiology

PPL European Reference Center, Expertise Center for Lymphovascular Medicine
NEUROVASC European Reference Center, Department of Clinical Genetics

VASCA European Reference Center, Expertise Center for Hemangiomas and Congenital Vascular Abnormalities (Hecovan)

HTAD European Reference Center, Department of Cardiothoracic Surgery and Medical Genetics



VASCA European Reference Center, Dermatology Service

