We are pleased to announce the latest additions to our growing library of resources designed to help educate and inform about complex genetic conditions that affect individuals and families worldwide. Our newest pages focus on Marfan syndrome, Familial Thoracic Aortic Aneurysm and Dissection (familial TAAD), and Genetic testing in Heritable Thoracic Aortic Diseases (HTAD).
Understanding Marfan Syndrome and Familial TAAD
Marfan syndrome and familial TAAD are genetic disorders that affect the body’s connective tissues. These conditions often lead to life-threatening complications such as aortic aneurysms and dissections, making early diagnosis and management essential.
Our new pages on Marfan syndrome and Familial TAAD provide information on symptoms, diagnosis, treatment options and strategies for managing these conditions. Our goal with these resources is to empower patients and their families with the knowledge they need to advocate for the best possible care.
The Crucial Role of Genetic Testing
Genetic testing for Heritable Thoracic Aortic Diseases is key to early diagnosis and intervention. Our new page on Genetic Testing in HTAD explains what genetic testing is, why it is important, and the types of results from HTAD testing. We believe that informed patients are better equipped to navigate the complexities of genetic disease and become advocates for their health.
Visit Our New Informational Pages
To explore our new resources on Marfan Syndrome, Familial TAAD, and genetic testing, we invite you to visit our dedicated information pages.