New Publication on Patient Pathway for Diagnosing and Managing Capillary Malformations

The VASCERN-VASCA Working Group has published a new paper in the Journal of Vascular Anomalies that offers a detailed explanation of the existing diagnostic and management pathway for capillary malformations (CMs). This pathway, developed by experts from 14 leading European centers, is designed to help healthcare providers accurately diagnose and manage CMs. You can read the full article here.

Capillary malformations, often visible as red stains on the skin, can vary widely from minor cosmetic issues to signs of more complex conditions linked to vascular syndromes. The VASCERN-VASCA pathway offers a clear, step-by-step approach to help clinicians recognize, diagnose, and manage these conditions with confidence.

The pathway was created through a collaborative process using the Nominal Group Technique. This method involved structured discussions among experts in dermatology, radiology, genetics, and other specialties. By bringing together diverse perspectives, the pathway reflects a comprehensive and practical approach to managing capillary malformations.

The paper explains how to use the pathway step-by-step, including:

• Six subtypes of CMs:
  • Nevus simplex
  • Isolated CM (syndromic or nonsyndromic)
  • CM of microcephaly CM syndrome
  • CM of CM–arteriovenous malformation syndromes
  • “Pseudo” CM of arteriovenous malformation
  • Cutis marmorata telangiectatica congenita
• Color-Coded System:
  The pathway uses a color-coded system to organize information on:
  • Clinical evaluations
  • Diagnostic tests
  • Genetic information
  • Treatment options
• Management Guidelines:
  Practical advice is provided on managing each subtype, including when to perform imaging and how to address complications.

The paper emphasizes the importance of multidisciplinary care, involving various specialists to ensure comprehensive treatment for patients with capillary malformations. Expert centers are also highlighted for their role in providing specialized care and advancing research.

You can download the full patient pathway here.