Patient Pathways

Patient Pathways aim to improve the care and management of patients with a rare disease. They include the “red flags” that may lead to the suspicion of the disease, how to reach a definite diagnosis and the management and follow-up recommendations. They are a very important tool used in defining the best patient care and will be further validated and updated when needed.

Results (8)
























Lymphatic Malformation Patient Pathway
April 29 2020

This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Lymphatic Malformation Patient Pathway, we invite you to also read the published paper and watch the webinar replay on this pathway.


Venous Malformation Patient Pathway
April 29 2020

This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Venous Malformation Patient Pathway, we invite you also to read the published paper and watch the webinar replay on this pathway.


Capillary Malformation Patient Pathway
April 29 2020

This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management.


Algoritmo Clinico : Hemangioma infantil severo/raro
March 20 2019

Percoso Del Paziente: Emangioma Infantile Grave/Raro (VASCA)
March 20 2019

Severe/Rare Infantile Hemangioma
March 20 2019

This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Severe/Rare Infantile Hemangioma Patient Pathway, we invite you also to read the published paper and watch the webinar replay on this pathway.


Schwere / seltene infantile Hämangiome
March 20 2019

Komplicerade Infantila Hemangiom
March 20 2019

Godkänt patientflödes algorithm


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