VASCERN’s Lymphoedema Colouring Book Gains International Recognition

A unique educational tool created within VASCERN’s Paediatric and Primary Lymphoedema (PPL) Working Group is reaching a wider audience. The Lymphoedema Colouring Book, designed to help children understand their condition in an engaging and reassuring way, was recently featured at two major international congresses: the Congress of the French Society of Vascular Medicine (SFMV) in Lille and the 12th International Lymphoedema Framework (ILF) Conference in Canada.

Available in ten languages, the book combines friendly illustrations, simple explanations, and a child-adapted version of the Do’s and Don’ts for lymphedema skin care and compression. It is a practical and reassuring tool that helps children learn about compression, skincare, and daily routines in a way that feels safe and approachable.

Helping children understand lymphoedema

Developed as a child-friendly resource, the Lymphoedema Colouring Book transforms medical guidance into playful, illustrated pages that encourage learning and dialogue between children, their families, and healthcare providers.

Each section simplifies essential information about lymphedema care, from compression and skincare to daily routines, allowing children to actively engage with their condition while colouring. The book’s mix of visuals and simple explanations helps reduce fear, build confidence, and promote good habits from an early age.

The project was led by Dr. Caroline Fourgeaud from Hôpital Cognacq-Jay (France) and Manuela Lourenço Marques, Co-Chair of the PPL European Patient Advocacy Group (ePAG) and patient representative from andLINFA, with illustrations by Chrystèle Lim. It was validated by the PPL Working Group and translated into ten languages with the support of patient associations in the ePAG and wider patient community, ensuring accessibility for children and families across Europe.