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Home - Network - Patient Representation - Vascular Anomalies (VASCA)
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Vascular Anomalies (VASCA)

The Vascular Anomalies (VASCA) European Patient Advocacy Group (ePAG) ensures that the voices of patients living with rare vascular anomalies such as lymphatic malformations, capillary malformations, arteriovenous malformations, and infantile haemangiomas are heard in the clinical, research, and care initiatives led by VASCERN.

What are Vascular Anomalies?

Vascular anomalies are a group of rare conditions that affect the blood vessels and lymphatic system. They can present as malformations of capillaries, veins, arteries, or lymphatic vessels, often leading to significant health complications depending on their size and location. These conditions require specialised care and ongoing management to improve patient outcomes and quality of life.

Meet the VASCA ePAG Representatives

Maria BAREA from Belgium and Petra BORGARDS from Germany serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for HHT, representing patient associations VASCAPA and Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation).

Maria BAREA
ePAG VASCA Co-Chair
Maria BAREA
Patient Advocate
Petra BORGARDS 1
ePAG VASCA Deputy Co-Chair
Petra BORGARDS
Patient Advocate

Other ePAG Representatives


Czech Republic
AVMinority, z.s.

Ireland
LGD Alliance Europe (LGDA)

Netherlands
HEVAS
Maria BAREA 5
Caroline VAN DEN BOSCH
Patient Advocate

CMTC-OVM
Lex VAN DER HEIJDEN
Lex VAN DER HEIJDEN
Patient Advocate

Portugal
Associação Nacional de Doentes Linfáticos (andLINFA)
Maria BAREA 1
Carminda GONÇALVES
Patient Advocate

Other European Patient Organisations


Finland
Harvinaisten sairauksien ja vammojen potilasyhdistysten organisaatio HARSO ry

Suomen Klippel-Trenaunay ry

France
Association Ollier-Maffucci Europe

Association Sturge-Weber France

Agir Pour La Malformation Lymphatique En Alliance

Germany
Interessengemeinschaft Sturge-Weber-Syndrom e.V.

Italy
Fondazione Alessandra Bisceglia ViVa Ale

Netherlands
Nederlandse vereniging van mensen met een Wijnvlek of Sturge-Weber syndroom (Nv WSWs)

Spain
Asociación Española de Cavernomas
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