ePAG VASCA Co-Chair
Maria BAREA
Patient Advocate
Network
Vascular Anomalies (VASCA)
The Vascular Anomalies (VASCA) European Patient Advocacy Group (ePAG) ensures that the voices of patients living with rare vascular anomalies such as lymphatic malformations, capillary malformations, arteriovenous malformations, and infantile haemangiomas are heard in the clinical, research, and care initiatives led by VASCERN.
What are Vascular Anomalies?
Vascular anomalies are a group of rare conditions that affect the blood vessels and lymphatic system. They can present as malformations of capillaries, veins, arteries, or lymphatic vessels, often leading to significant health complications depending on their size and location. These conditions require specialised care and ongoing management to improve patient outcomes and quality of life.
Meet the VASCA ePAG Representatives
Maria BAREA from Belgium and Petra BORGARDS from Germany serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for HHT, representing patient associations VASCAPA and Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation).
ePAG VASCA Deputy Co-Chair
Petra BORGARDS
Patient Advocate
Other ePAG Representatives
Other European Patient Organisations
Harvinaisten sairauksien ja vammojen potilasyhdistysten organisaatio HARSO ry
Suomen Klippel-Trenaunay ry
Association Ollier-Maffucci Europe
Association Sturge-Weber France
Agir Pour La Malformation Lymphatique En Alliance
Interessengemeinschaft Sturge-Weber-Syndrom e.V.
Fondazione Alessandra Bisceglia ViVa Ale
Nederlandse vereniging van mensen met een Wijnvlek of Sturge-Weber syndroom (Nv WSWs)
Asociación Española de Cavernomas