ePAG MSA Co-Chair
Eva COLLADO
Patient Advocate
Network
Medium Sized Arteries (MSA)
The Medium-Sized Arteries (MSA) European Patient Advocacy Group (ePAG) is dedicated to ensuring that the voices of patients living with rare medium-sized artery diseases, such as Vascular Ehlers-Danlos Syndrome (vEDS) and other related disorders, are central to the work of VASCERN.
What are Medium-Sized Arteries (MSA) Diseases?
Medium-Sized Arteries (MSA) diseases affect the medium-sized arteries in the body and can lead to serious complications such as arterial dissection, aneurysm, or rupture. Conditions like Vascular Ehlers-Danlos Syndrome (vEDS), which is a genetic disorder, result in fragile arteries that can tear easily. Early diagnosis, proper care, and ongoing monitoring are essential to managing these conditions and preventing life-threatening complications.
Meet the MSA ePAG Representatives
Eva COLLADO from Spain and Claire GUERRIER from France serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for MSA, representing patient associations ANSEDH – Asociación Nacional del Síndrome de Ehlers-Danlos e Hiperlaxitud and Association Française des Syndromes d’Ehlers Danlos (AFSED).
ePAG MSA Deputy Co-Chair
Claire GUERRIER
Patient Advocate
Other ePAG Representatives
AISED ONLUS – Associazone Italiana Sindrome Ehlers-Danlos
Alessandra VERONESE
Patient Advocate
Other European Patient Organisations
Ehlers-Danlos Initiative Österreich – EDS Austria
Shg Ehlers-Danlos-Syndrom
FMD-Be (FMD Belgium)
Gesed – Groupe D’Entraide S.E.D.
Bindweefsel.be
Ehlers-Danlos foreningen i Danmark
Suomen Reumaliitto – Finnish Rheumatism Association
Suomen Ehlers-Danlos -yhdistys ry
Union Nationale Des Syndromes D’Ehlers-Danlos
AssoSED1+
Angeborene-Bindegewebs-Erkrankungen e.V.
CEDI Onlus Italia
FMD Groep Nederland
Norsk lymfødem- og lipødemforbund (NLLF)
Asociación Nacional De Afectados Por Sindromes De Ehlers Danlos E Hiperlaxitud
Swedish Eds Association (EDS Riksförbund)
Swiss EDS
Annabelle’s Challenge
Ehlers-Danlos Support Group
The Ehlers-Danlos Society