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Home - Network - Experts - Developing Partners

Network

Rare Disease Working Groups Transversal Working Groups

Experts

Full Members Affiliated Partners Collaborating Partners Developing Partners Young Leads

Patient Representation

European Patient Advocacy Group (ePAG) Hereditary Haemorrhagic Telangiectasia (HHT) Heritable Thoracic Aortic Diseases (HTAD) Medium Sized Arteries (MSA) Neurovascular Diseases (NEUROVASC) Pediatric and Primary Lymphoedema (PPL) Vascular Anomalies (VASCA) Patient Organisations

Developing Partners

At VASCERN, developing partners play a crucial role in expanding the reach of expert care for rare multisystemic vascular diseases. These partners come from countries eligible to join European Reference Networks (ERNs) but are in the process of gaining the necessary experience to become full members of VASCERN. Their dedication to growing their expertise and building national networks aligns with VASCERN’s mission to improve care for rare vascular diseases across Europe.

Croatia

University Hospital Centre Zagreb, Zagreb

HTAD Developing Partner, Cardiovascular Clinic

Dr. Irena IVANAC

Cardiologist

Dr. Sanda HULJEV FRKOVIC

Paediatrician

University Hospital Centre Zagreb, Zagreb

MSA Developing Partner, Cardiovascular Clinic

Majda Vrkic Kirhmajer

Dr. Majda VRKIĆ KIRHMAJER

Cardiologist

Czech Republic

University Hospital Brno, Brno

VASCA Developing Partner, Department of Pediatric Oncology

Jaroslav Sterba

Pr. Jaroslav STERBA

Pediatric Oncologist

Koskova_MD_Czech Republic

Dr. Olga KOŠKOVÁ

Plastic Surgeon

Norway

Oslo University Hospital, Oslo

NEUROVASC Developing Partner, Department of Neurology

Pr. Mona ELISABETH SKJELLAND

Neurologist

Anne Hege Aamodt

Pr. Anne HEGE AAMODT

Senior Consultant

Poland

Medical University of Lodz, Łódź

VASCA Developing Partner, Department of Pediatric Surgery and Oncology

Przewratil

Pr. Przemysław PRZEWRATIL

Paediatric Surgeon

Dr. Dariusz WYRZYKOWSKI

Paediatric Surgeon

Wroclaw Medical University Hospital, Wroclaw

PPL Developing Partners Centre, Clinic of Angiology and Internal Medicine

Andrzej-Szuba

Pr. Andrzej SZUBA

Angiologist

Angelika Chachaj

Dr. Angelika CHACHAJ

Angiologist

Romania

University of Medicine and Pharmacy Carol Davila, Bucharest

HTAD & MSA Developing Partner, Expert Center for Rare Cardiovascular Genetic Diseases

Pr. Ruxandra JURCUT

Cardiologist

Victor Babeş University of Medicine and Pharmacy, Timișoara

VASCA Developing Partner, Center of Expertise For Rare Vascular Diseases

Pr. Anca Maria CIMPEAN

Pathologist

Maria Corina Stanciulescu

Dr. Corina MARIA STANCIULESCU

Paediatric Surgeon

Spain

Hospital Universitario Virgen Macarena, Sevilla

NEUROVASC Developing Partner, Neurovascular Unit

Dr. Ana DOMINGUEZ MAYORAL

Neurologist