Matomo

Submit A Case
Home - Network - Rare Disease Working Groups - Vascular Anomalies (VASCA-WG) - Experts & Centres - Full Members
Vascular Anomalies (VASCA-WG)
Introduction Diseases covered
Experts & Centres
Full Members Affiliated Partners Developing Partners Young Leads Map of Centers
Clinical Decision Support Tools
Clinical Expert Consensus Statements Clinical Outcome Measures Clinical Practice Guidelines (CPGs) adopted Do’s and Don’ts Gene-Disease Associations and Genetic Testing Recommendations Patient Pathways
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars
VASCA Magazine

Full Members

Miikka VIKKULA
Chair
Pr. Miikka VIKKULA
Clinical Geneticist
Pubmed
Leo SCHULTZE KOOL 23
Co-Chair
Pr. Leo SCHULTZE KOOL
Interventional Radiologist
Pubmed

HEALTHCARE PROVIDER (HCP) FULL MEMBERS

Belgium
Cliniques universitaires Saint-Luc, Brussels

VASCA European Reference Center, Center for Congenital Vascular Defects

Miikka VIKKULA
Pr. Miikka VIKKULA
Clinical Geneticist
Pubmed
Laurence M. BOON
Pr. Laurence M. BOON
Plastic and Reconstructive Surgeon
Pubmed
VASCAPA
Denmark
Rigshospitalet, Copenhagen

VASCA European Reference Centre, Department of Otorhinolaryngology, Head and Neck Surgery & Audiology

Leo SCHULTZE KOOL
Dr. Mikkel KALTOFT
Otorhinolaryngologist
Pubmed
Bitten Schoenewolf-greulich
Dr. Bitten SCHÖNEWOLF-GREULICH
Clinical Geneticist
Pubmed
Finland
Helsinki University Hospital, Helsinki

VASCA European Reference Center, Department of Pediatric Surgery

Kristiina KYRKLUND
Pr. Kristiina KYRKLUND
Pediatric Surgeon
Pubmed
Jukka Tolonen 3
Dr. Jukka TOLONEN
Internal Medicine Specialist
Pubmed
France
AP-HP Hôpital Lariboisiere, Paris

VASCA European Reference Centre, Reference center for superficial vascular anomalies

Annouk Anne BISDORFF
Dr. Annouk Anne BISDORFF
Neuroradiologist
Pubmed
Olivia BOCCARA
Dr. Olivia BOCCARA
Dermatologist and Venerologist
Pubmed
Germany
University Medical Center Freiburg, Freiburg

VASCA European Reference Center, Clinic for Pediatric Hematology and Oncology

Leo SCHULTZE KOOL 19
Dr. Friedrich KAPP
Pediatric Hematologist/Oncologist
Pubmed
Annegret HOLM
Dr. Annegret HOLM
Pediatric Hematologist/Oncologist
Pubmed
Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation)
Ireland
Children’s Health Ireland, Dublin

VASCA European Reference Center, Department of Dermatology

Leo SCHULTZE KOOL 18
Pr. Alan IRVINE
Professor of Dermatology
Pubmed
Leo SCHULTZE KOOL 17
Dr. Veronika DVORAKOVA
Consultant Dermatologist
Pubmed
Italy
Bambino Gesù Children’s Hospital, Rome

VASCA European Reference Center, Dermatology Department

Leo SCHULTZE KOOL 16
Dr. Andrea DIOCIAIUTI
Dermatologist
Pubmed
May EL HACHEM
Dr. May EL HACHEM
Dermatologist
Pubmed
Lithuania
Vilnius University Hospital Santaros Klinikos, Vilnius

VASCA European Reference Center, Center of Vascular and Endovascular Surgery

Leo SCHULTZE KOOL 14
Dr. Birutė VAIŠNYTÉ
Vascular Surgeon
Pubmed
Leo SCHULTZE KOOL 13
Dr. Darius PALIONIS
Radiologist
Pubmed
Netherlands
Radboud University Medical Center, Nijmegen

VASCA European Reference Center, Expertise Center for Hemangiomas and Congenital Vascular Abnormalities (Hecovan)

Leo SCHULTZE KOOL 23
Pr. Leo SCHULTZE KOOL
Interventional Radiologist
Pubmed
Carine VAN DER VLEUTEN 1
Dr. Carine VAN DER VLEUTEN
Dermatologist
Pubmed
Norway
Oslo University Hospital, Oslo

VASCA European Reference Centre, Department of Radiology and Nuclear Medicine

Portugal
São João University Hospital, Porto

VASCA European Reference Center, Pediatric Oncology Department

Maria BOM SUCESSO 1
Dr. Maria BOM SUCESSO
Pediatric Oncologist
Pubmed
Dr. Antonio Miguel MADUREIRA
Radiologist
Pubmed
Spain
Sant Joan de Déu Barcelona Hospital, Barcelona

VASCA European Reference Center, Dermatology Service

Leo SCHULTZE KOOL 8
Dr. Eulalia BASELAGA TORRES
Pediatric dermatologist
Pubmed
Leo SCHULTZE KOOL 7
Dr. Miguel BEJARANO SERRANO
Pediatric Surgeon
Pubmed
Sweden
Karolinska University Hospital, Stockholm

VASCA European Reference Center, Department of Reconstructive Plastic Surgery

Leo SCHULTZE KOOL 6
Dr. Nader GHAFFARPOUR
Pediatric surgeon
Pubmed
Sofia Frisk
Dr. Sofia FRISK
Clinical Geneticist
Pubmed
Skip to content