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Vascular Anomalies (VASCA-WG)
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Experts

Miikka VIKKULA
Chair
Pr. Miikka VIKKULA
Clinical Geneticist
Pubmed
Leo SCHULTZE KOOL 23
Co-Chair
Pr. Leo SCHULTZE KOOL
Interventional Radiologist
Pubmed

HEALTHCARE PROVIDER (HCP) FULL MEMBERS

Belgium
Cliniques universitaires Saint-Luc

VASCA European Reference Center, Center for Congenital Vascular Defects

Miikka VIKKULA
Pr. Miikka VIKKULA
Clinical Geneticist
Pubmed
Laurence M. BOON
Pr. Laurence M. BOON
Plastic and Reconstructive Surgeon
Pubmed
VASCAPA
Denmark
Rigshospitalet

VASCA European Reference Centre, Department of Otolaryngology and Audiology

Leo SCHULTZE KOOL
Dr. Mikkel KALTOFT
Otorhinolaryngologist
Pubmed
Finland
Helsinki University Hospital

VASCA European Reference Center, Department of Pediatric Surgery

Kristiina KYRKLUND
Pr. Kristiina KYRKLUND
Pediatric Surgeon
Pubmed
Jukka Tolonen 3
Dr. Jukka TOLONEN
Internal Medicine Specialist
Pubmed
France
AP-HP Hôpital Lariboisiere

VASCA European Reference Centre, Department of Neuroradiology and ENT

Annouk Anne BISDORFF
Dr. Annouk Anne BISDORFF
Neuroradiologist
Pubmed
Olivia BOCCARA
Dr. Olivia BOCCARA
Dermatologist and Venerologist
Pubmed
Germany
University Medical Center Freiburg

VASCA European Reference Center, Center of Pediatrics and Adolescent Medicine

Leo SCHULTZE KOOL 19
Dr. Friedrich KAPP
Pediatric Hematologist/Oncologist
Pubmed
Annegret HOLM
Dr. Annegret HOLM
Pediatric Hematologist/Oncologist
Pubmed
Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation)
Ireland
Children’s Health Ireland

VASCA European Reference Center, Department of Dermatology

Leo SCHULTZE KOOL 18
Pr. Alan IRVINE
Professor of Dermatology
Pubmed
Leo SCHULTZE KOOL 17
Dr. Veronika DVORAKOVA
Consultant Dermatologist
Pubmed
Italy
Bambino Gesù Children’s Hospital

VASCA European Reference Center, Dermatology Department

Leo SCHULTZE KOOL 16
Dr. Andrea DIOCIAIUTI
Dermatologist
Pubmed
May EL HACHEM
Dr. May EL HACHEM
Dermatologist
Pubmed
Lithuania
Vilniaus Universiteto ligoninė Santaros Klinikos

VASCA European Reference Center, Center of Vascular and Endovascular Surgery

Leo SCHULTZE KOOL 14
Dr. Birutė VAIŠNYTÉ
Vascular Surgeon
Pubmed
Leo SCHULTZE KOOL 13
Dr. Darius PALIONIS
Radiologist
Pubmed
Netherlands
Radboud University Medical Center

VASCA European Reference Center, Expert center for Hemangioma and Vascular Anomalies (Hecovan)

Leo SCHULTZE KOOL 23
Pr. Leo SCHULTZE KOOL
Interventional Radiologist
Pubmed
Carine VAN DER VLEUTEN 1
Dr. Carine VAN DER VLEUTEN
Dermatologist
Pubmed
Norway
Oslo Universitetssykehus

VASCA European Reference Centre, Department of Radiology and Nuclear Medicine

Portugal
Centro Hospitalar Universitário de São João

VASCA European Reference Center, Pediatric Oncology Department

Maria BOM SUCESSO 1
Dr. Maria BOM SUCESSO
Pediatric Oncologist
Pubmed
Dr. Antonio Miguel MADUREIRA
Radiologist
Pubmed
Spain
Hospital Sant Joan de Déu Barcelona

VASCA European Reference Center, Dermatology Service

Leo SCHULTZE KOOL 8
Dr. Eulalia BASELAGA TORRES
Pediatric dermatologist
Pubmed
Leo SCHULTZE KOOL 7
Dr. Miguel BEJARANO SERRANO
Pediatric Surgeon
Pubmed
Sweden
Karolinska University Hospital

VASCA European Reference Center, Department of Reconstructive Plastic Surgery

Leo SCHULTZE KOOL 6
Dr. Nader GHAFFARPOUR
Pediatric surgeon
Pubmed
Sofia Frisk
Dr. Sofia FRISK
Clinical Geneticist
Pubmed

Affiliated Partners

There are 2 types of affiliated partners:

  1. Associated National Centers (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
  2. A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.

For all documents related to Affiliated Partners see the Board Statement States page here

Associated National Centers

Austria
University Hospital Graz

VASCA European Reference Center, Department of Paediatric and Adolescent Surgery

Leo SCHULTZE KOOL 4
Dr. Paolo GASPARELLA
Pediatric Surgeon
Pubmed
Leo SCHULTZE KOOL 3
Pr. Emir HAXHIJA
Pediatric Surgeon
Pubmed
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