Matomo

Submit A Case
Home - Network - Working Groups - Rare Disease Working Groups - Vascular Anomalies (VASCA-WG) - Research - Clinical Trials/Observational Studies
Vascular Anomalies (VASCA-WG)
Introduction Diseases covered
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Clinical Expert Consensus Statements Clinical Outcome Measures Clinical Practice Guidelines (CPGs) adopted Do’s and Don’ts Gene-Disease Associations and Genetic Testing Recommendations Patient Pathways
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars
VASCA Magazine

Clinical Trials/Observational Studies

Clinical trials and observational studies are important for advancing medical knowledge and improving patient care. Clinical trials are essential for evaluating the safety and effectiveness of new treatments, while observational studies provide valuable insights into the natural history of diseases and risk factors.

The VASCA-WG currently has one clinical trial underway: The VASE (Vascular Anomaly-Sirolimus Europe) is phase III multicentric study evaluating the efficacy and safety of sirolimus in Vascular Anomalies that are refractory to standard care. It started in January 25, 2016 to end April 1, 2030.

Skip to content