Patient Pathways
Patient Pathways aim to improve the care and management of patients with a rare disease. They include the “red flags” that may lead to the suspicion of the disease, how to reach a definite diagnosis and the management and follow-up recommendations. They are a very important tool used in defining the best patient care and will be further validated and updated when needed.
This document offers a detailed pathway for Kaposiform Hemangioendothelioma (KHE) that outlines the journey from diagnosis through treatment and management.
This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Lymphatic Malformation Patient Pathway, we invite you to also read the published paper and watch the webinar replay on this pathway.
This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Venous Malformation Patient Pathway, we invite you also to read the published paper and watch the webinar replay on this pathway.
The Capillary Malformations Patient Pathway outlines the recommended steps for diagnosing, treating, and monitoring patients with capillary malformations. Developed by the VASCERN Vascular Anomalies Working Group (VASCA-WG), this pathway supports healthcare professionals in ensuring timely and coordinated care.
For more insights on the Capillary Malformations Patient Pathway, we invite you to also read the published paper on this pathway. A webinar on this pathway is coming soon!
This document offers a detailed pathway that outlines the journey from diagnosis through treatment and management. For more insights on the Severe/Rare Infantile Hemangioma Patient Pathway, we invite you also to read the published paper and watch the webinar replay on this pathway.
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