Matomo

Submit A Case
Home - Network - Rare Disease Working Groups - Vascular Anomalies (VASCA-WG) - Clinical Decision Support Tools - Clinical Outcome Measures
Vascular Anomalies (VASCA-WG)
Introduction Conditions NARRATIVE Project
Experts & Centres
Full Members Affiliated Partners Developing Partners Young Leads Patient Representatives
Find an expert centre
Clinical Decision Support Tools
Clinical Expert Consensus Statements Clinical Outcome Measures Clinical Practice Guidelines Do’s and Don’ts Gene-Disease Associations and Genetic Testing Recommendations Patient Pathways
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars
VASCA Magazine
Print Edition Online Edition

Clinical Outcome Measures

Clinical outcome measures are standardised tools used to assess how a patient’s condition is responding to treatment and how it affects their quality of life over time. Having consistent, validated outcome measures across centres is essential for comparing results, conducting research, and improving care.

The VASCA Working Group is actively involved in the OVAMA project — Outcome Measures for Vascular Malformations. OVAMA is developing and validating a set of standardised outcome measures specifically designed for people living with vascular malformations. These measures cover both clinical indicators (such as lesion size and complications) and patient-reported outcomes (such as pain, function, and quality of life).

The OVAMA tools are also being incorporated into the NARRATIVE registry project, which will collect long-term outcome data from over 1,200 patients across Europe.

For full information about the OVAMA project, visit the OVAMA website by clicking here.

Skip to content