Do’s & Don’ts

The Do’s & Don’ts for managing pregnancy in women with rare vascular diseases provide practical, condition-specific advice aimed at ensuring the health and safety of both the mother and baby. These recommendations are developed by VASCERN’s Rare Disease Working Groups (RDWGs), who specialise in the care of conditions such as Heritable Thoracic Aortic Diseases (HTAD), Vascular Ehlers-Danlos Syndrome (vEDS), Neurovascular Diseases, and more.

These guidelines offer a clear and concise list of actions that healthcare providers and patients should follow (or avoid) during pregnancy to minimise risks and optimise outcomes. By adhering to these recommendations, healthcare professionals can provide more targeted, effective care for women with these complex conditions.