For Non-VASCERN Members
The Clinical Patient Management System (CPMS 2.0) enables medical professionals to collaborate with VASCERN experts on complex rare disease cases. If you are a physician seeking expert advice, this guide below will walk you through the steps to initiate and participate in case discussions.
If you’re not part of VASCERN but want to discuss a complex case with VASCERN experts via CPMS 2.0, here’s how you can proceed:
Step 1: Contact Your National Centre
Check if your country has a national centre affiliated with VASCERN, reach out to them first. They can facilitate a discussion within CPMS 2.0 if needed. You can find them here.
Step 2: Contact VASCERN Directly
If your country does not have a VASCERN-affiliated national centre, you can directly contact the VASCERN CPMS Helpdesk by emailing cpms.vascern@aphp.fr.
In your email, provide the following details to help us assess your request:
- What is the rare disease (if diagnosed) for which you would like to consult VASCERN’s experts?
- If undiagnosed, please describe the issues with this specific case and what are the problems identified
- What is your specialty?
- What is your country?
- Is the patient already followed in your centre?
- Is it an urgent case?
- Please confirm that a patient’s consent form for data sharing for care (diagnosis and treatment) has been signed
Case Assessment
Once your email is received, the VASCERN CPMS Helpdesk will determine if the case aligns with VASCERN’s expertise.
Secure Link for Document Submission
If your case is accepted, you will receive a secure link to upload supporting documents such as:
- Case overviews.
- Relevant files and images.
Watch our video on using the Secure Link with HCP Anywhere for detailed instructions.
Temporary Guest Access to CPMS 2.0
If you wish to participate in the panel discussion, you will be provided with temporary guest access to CPMS 2.0. This access allows you to collaborate directly with VASCERN experts. Technical instructions will be shared to guide you through the process.
Important Notes
- Contact Your National Centre First
If your country has a VASCERN-affiliated national centre, they should be your first point of contact. They are best positioned to handle referrals and facilitate case discussions within CPMS.
- Patient Consent Is Mandatory
Kindly confirm with the CPMS helpdesk that a signed patient consent form has been obtained. This consent is essential to ensure compliance with GDPR regulations and to enable the secure sharing of data for diagnosis and treatment purposes. Please be aware that it is your responsibility to securely store the consent form.
The VASCERN CPMS Helpdesk is here to assist you throughout the process. From submitting your request to navigating the CPMS platform, we are committed to ensuring a seamless experience.