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Home - Network - Rare Disease Working Groups - Vascular Ehlers-Danlos syndr. (MSA-WG) - Clinical Decision Support Tools - Patient Pathways
Vascular Ehlers-Danlos syndr. (MSA-WG)
Introduction Diseases covered
Experts & Centers
Full Members Developing Partners Patient Representatives Map of Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars

Patient Pathways

Patient Pathways aim to improve the care and management of patients with a rare disease. They include the “red flags” that may lead to the suspicion of the disease, how to reach a definite diagnosis and the management and follow-up recommendations. They are a very important tool used in defining the best patient care and will be further validated and updated when needed.

Results (3)
Percoso Del Paziente: Ehlers-Danlos vascolare (vEDS) (MSA)
March 20 2023
Patient Pathway for Vascular Ehlers-Danlos Syndrome
September 28 2018

This document is an opinion statement reflecting strategies put forward by experts and patient representatives involved in the Medium Sized Arteries (MSA) Rare Disease Working Group of VASCERN.

Medium Sized Arteries Parcours Patient pour le Syndrôme d’ Ehlers-Danlos vasculaire (vEDS) FR
September 28 2018
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