Rare Diseases International (RDI), a global organization dedicated to advocating for individuals living with rare diseases (PLWRD), is spearheading an important campaign urging the World Health Assembly (WHA) to adopt a Resolution on Rare Diseases in 2025. This initiative has the potential to bring about life-changing improvements for millions of people around the world who are affected by rare diseases.
In collaboration with the Arab Republic of Egypt, the State of Qatar, and Spain, RDI is hosting a crucial webinar on August 30, 2024, from 14:00 to 15:30 CEST. This online event will explain the vital opportunities a WHA Resolution could create and discuss why it’s essential for this Resolution to become a reality.
Why the WHA Resolution on Rare Diseases Matters
For the millions of people affected by rare diseases worldwide, a WHA Resolution could be a game-changer. The webinar will shed light on the significant challenges PLWRD face, such as disparities in healthcare access and the urgent need for a global response. By bringing these issues to the forefront, the Resolution aims to recognize rare diseases as a public health priority, driving policy changes that will make a real difference in the lives of those affected. It will offer a unified framework for governments and international organizations to prioritize rare diseases, ensuring that this often-overlooked population receives the attention and care they deserve.
What the Webinar Will Cover
During the webinar, participants will explore several key topics:
- The Challenges Faced by PLWRD: An in-depth look at the unique hurdles in diagnosis, treatment, and care, and the critical need for coordinated global and regional strategies to address these issues.
- The Importance of a WHA Resolution: A discussion on why this proposed Resolution is vital for improving healthcare equity for PLWRD and how it could spark meaningful changes across different regions.
- How to Support the Initiative: Practical advice on how individuals and organizations can contribute to the success of this advocacy effort, ensuring that the Resolution becomes a reality in 2025.
This webinar presents an invaluable opportunity for healthcare professionals, advocates, policymakers, and members of the rare disease community to unite in support of a cause that could profoundly impact millions of lives. Your involvement is key to building momentum for this Resolution, which promises to bring greater equity and better healthcare outcomes for those living with rare diseases.
To learn more and register for the webinar, click here.