We are thrilled to share a significant milestone achieved in the VASCERN Registries Project. The creation of the registries poster stands as one of our first accomplishments, aimed at providing patients, healthcare professionals, and stakeholders with a comprehensive understanding of the project. This informative poster outlines the project’s goals, timeline, introduces the VASCERN Registries project team, and emphasizes how this initiative will bolster research capabilities and knowledge about rare vascular diseases.
Today, we are delighted to announce a remarkable update to the registries project poster—the inclusion of the 6th Rare Disease Working Group, NEUROVASC-WG, and its dedicated Project Team. This addition signifies VASCERN’s unwavering commitment to expanding our network of experts, ensuring a holistic approach to rare vascular diseases. The Neurovascular Diseases Working Group (NEUROVASC-WG) currently focuses on CADASIL and Moya Moya Angiopathy, delivering specialized expertise in these conditions.
To explore the updated poster, we invite you to view it here.
This new addition exemplifies our continuous efforts to strengthen VASCERN’s collaborative platform, enabling healthcare professionals to connect, exchange knowledge, and advance research in the field of rare vascular diseases.