Networking breaks gave attendees valuable opportunities to connect, exchange ideas, and build meaningful relationships. These interactions created a supportive network of like-minded advocates, strengthening the collective voice of rare vascular disease patients and their families.
Rita Francisco, a representative from the European Organisation for Rare Diseases (EURORDIS), discussed EURORDIS’ role in supporting patient partnerships within the European Reference Networks (ERNs). The EURORDIS Open Academy was introduced as a valuable resource, offering training opportunities to enhance the skills and knowledge of ePAG advocates. The VASCERN ePAG Co-Chairs shared best practices across 5 rare disease working groups, empowering each other with effective strategies for their work within VASCERN.