VASCERN News
![Vascular Tumors]( https://vascern.eu/app/themes/trinity/public/images/loading.gif?id=d41d8cd98f00b204e980 )
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
During the EURORDIS Membership Meeting in Budapest on May 19 – 20, some of our VASCERN ePAG (European Patient Advocacy Group) representatives had the opportunity to meet, and to share with all ePAG groups challenges & achievements in engaging with new ERNs.
Besides this face-to-face meeting in the framework of the EURORDIS Membership Meeting, our Patient Group started to work through “virtual” monthly meeting since the official launch of VASCERN !