VASCERN News
23 July 2024
Revision of Rare Vascular Tumors in the Orphanet Database
The EURORDIS Black Pearl Awardees for 2020 have been announced and we are very happy to see that Claudia Crocione, our European Patient Advocacy Group (ePAG) Co-Chair for Hereditary hemorrhagic telangiectasia (HHT), has been recognised with the EURORDIS Volunteer Award!
We congratulate Claudia for this well-deserved recognition and for her invaluable contribution to the both the VASCERN ePAG and HHT WG and for all of her hard work and dedication to improving the lives of patients with HHT!
The 9th edition of the EURORDIS Black Pearl Awards will take place on 18 February 2020 at Le Plaza Hotel Brussels,where Claudia will receive her award. See the full list of EURORDIS Black Pearl Awards 2020 recipients here
To learn more about Claudia (who is equally Managing Director of HHT Europe), read her VASCERN Spotlights interview here