VASCERN 1st Year Deliverables Submitted!

VASCERN is a European Reference Network, an EU Project co-funded by the European Union 3rd Health Programme. Under the 5 year Framework Partnership Agreement (FPA) with the European Commission, VASCERN has signed a Specific Grant Agreement (SGA) for its first year of activities as an official ERN.

As February is our Month 12, VASCERN has submitted all of its deliverables to the European Commission. Once validated by the European Commission, all of these deliverables will be published on the VASCERN project page available on the EU Health Project database. Stay tuned!

During our first year of activities as an official ERN (March 2017-February 2018), monthly meetings have been held for each RDWG and transversal and patient groups, which allowed for progress to be made in many of our Work Packages:

List of our Work Packages (WP) & Deliverables (D) for Year 1 (March 2017-February 2018) 

WP1 Sharing of experience: discussion of complex clinical cases D1: Report on clinical case discussions

WP2 Definition of patient pathways D2: Report on VASCERN’s Patient Pathways available

WP3 Free VASCERN Mobile Application for IOS & Android D3: VASCERN Mobile Application (a report is available as a supporting document)

WP4 Pills of Knowledge (PoK) available online (website, youtube) D4: First 5 PoK available online (a report is available as a supporting document)

WP5 Registries D5: Report on VASCERN activities with regard to registries

WP6 Clinical trials & Research D6: Report on the clinical trials and research projects conducted within VASCERN

WP7 Availability of videos on YouTube D7: VASCERN YouTube Channel available with 75 videos uploaded (a report is available as a supporting document)

WP8 Definition of clinical outcomes D8 &D9: Report on the definition of simple clinical outcomes and disease specific clinical outcomes

WP9 Writing Clinical Practice Guidelines (expert consensus statement, recommendations,…) D10: Report on the clinical guidelines available

WP10 Do’s and Don’ts factsheets D11: Do’s and Don’ts Factsheets available for HHT-WG and MSA-WG, report on the progress of the other RDWGs

WP11 Communication D12 VASCERN Website and ERN Collaborative Platform (ECP – internal forum for experts) available (a report is available as a supporting document) D13 Report on translation D14 Newsletters D15 Social network pages (Facebook, Twitter, YouTube) (a report is available as a supporting document)

All information on our Action Plan, Work Packages and our 1st year Deliverables are available on the EU Health Programme Database here

EU 3rd Health Programme Database

More information on the European Union 3rd Health Programme here